tag:blogger.com,1999:blog-61117769412154240452024-03-05T08:40:15.744-05:00Josetta's 2011 AdventureMy unexpected journey with chemotherapyJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-6111776941215424045.post-54179818328143989762011-10-10T02:25:00.000-04:002011-10-10T02:25:56.477-04:00I'm Back Writing Again<b>JUNE 20, 2011:</b><br />
It’s been a long time since I’ve written my blog. I apologize for the delay. It isn’t like I’ve been sitting around eating bonbons. I’m back to many of my activities as well as continuing with doctor appointments and catching up on all that I didn’t get done earlier in the year. Several times a week I’d talk to myself about writing<br />
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Mostly, I’m feeling well. I’ve regained most of my energy and stamina. My biggest challenge is peripheral neuropathy--some in my hands, more in my feet. It’s worse when I get up from the bed or sitting awhile. Sometimes it causes pain, other times tingling or numbness. The greatest disadvantage is that it feels like I have half-tennis balls under my feet in that my balance isn’t stable. It’s a very common side effect from chemotherapy. <br />
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<b>MID AUGUST: </b><br />
I'm feeling so remiss about not keeping this blog up to date. <br />
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So many of you have been fantastic with keeping in touch. I've enjoyed reading about your activities. I thank you so very much for caring and sending cards and notes. I want you to know that your efforts have been beneficial for me. Knowing that I had you surrounding me with love, which converts to me with God/Spirit/Divine, was uplifting. Most days your timing was perfect--an inspiring card or note to boost my spirit just when I needed it. <br />
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So often, I start the day determined to add to my blog...only to fail. I've written so very many blogs/notes 'in my head' when I'm doing something that only takes my physical attention. Part of the trouble is that I have so much to write about and I'm not as apt to write at night like I used to do. I'm working at making sure that I get proper rest. <br />
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It took a couple of months after I finished my chemo treatments to feel more like my 'old' self although the chemo side effects continued for much longer than I expected--mostly hand and feet neuropathy that worsened as time when on. <br />
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I started taking a med in early July (Arimidex) that I think is doing a job on my bones, joints and muscles. I ache all over. It's difficult to bend or squat because of the weakness in my leg muscles. My fingers and arms aren't much better. I'm hoping that this will pass.<br />
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I meet with a trainer once a week to learn exercises that I can do at home to strengthen my body. Traci is excellent. She's taught me how to use a ball to exercise which is easier and safer than standing to stretch leg and core muscles. However, her concern for my safety is expressed in ways that indicate I'm an 'old lady'. Now, I know I am 'old;' certainly much older than Traci... Time to face reality...chronically, I am old.<br />
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<b>OCTOBER 2-- two months later! </b><br />
I can't believe that I haven't updated this blog entry yet! My intentions have been admirable, but not productive.<br />
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I'm back to feeling decent again. Thank goodness! I was started on Arimidex in July. It's purpose was to stop my body from producing estrogen since my tumor was estrogen receptor positive (ER+). Our bodies need estrogen for our muscles, bones and liver. I felt decades older than the 70 years that I recently celebrated. <br />
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After being on the drug about two months, I asked the doctor if I could switch to every other day. He agreed. My reasoning was that the drug is given in the same dose to all women. The median weight of those taking the drug in the study was around 150 lbs. I’m no where near that number. After a few weeks, I continued to have the bone, muscle and joint pain. I wasn't gaining much of my strength back. My right thumb hardly moved and hurt when I needed to move it, especially when using a pen. I exercised it each morning and during the day which seemed to help.<br />
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Anyway, I stopped the drug about six weeks ago. Finally a couple weeks ago, I started to gain back my strength and have a reduction of pain. I'm doing well now; it's mostly my hands that have residue side effects. <br />
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My doctor suggested acupuncture; I had a treatment last week. I also had a PET/CAT scan later that same day. A needle was used to insert a substance. I didn’t realize that was part of the test; probably not a good idea. <br />
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Haven't seen much results yet from the acupuncture. At least I don't have the extreme pain I was having earlier and can hold a pen. Now, it's mostly just a nuisance. I feel strongly that I'm on my way to a complete recovery to B.C. (before chemo). <br />
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I'm back to teaching my Mac/Apple classes at our senior center. I've reduced my involvement with AAUW (American Association of University Women) where I was an officer for the past few years. I'm now active with The Women's Fund of Greater Rochester. I believe in the focus of the group, helping women to be independent, by working through effective organizations already established in the area . I also enjoy the company of the other gals that are a part of the group. I found that when I retired I didn't know a lot of people in the Rochester area since we moved here when the kids were in middle and high school, I was working and we were boating and not home that much. Getting involved in the community was my way of meeting other women who lived nearby. It's worked out well for me. <br />
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Since my diagnosis, I've been asked to speak about my experiences and what I've learned. I'll be doing a talk on October 8 at the Crittenton Cancer Center for a Swan for Life Event. I thought that I was going to be one of a few speakers. When the invitation arrived I realized that I was the Keynote Speaker. Today and tomorrow I expect to have a pretty good outline of what I'll say. <br />
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I'm recently involved with a group called, Caring and Sharing, helping to spread information to cancer patients. Because of my skills, I often do computer and photography work for volunteer groups. Sometimes, that keeps me much than I care to. <br />
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During the summer I had the opportunity to attend a wonderful weekend of Wellness at Great Lakes Sanctuary, west/south of Ann Arbor. It was sponsored by a grant from the Susan G. Komen Foundation. It was inspirational, healing, relaxing and invigorating. It was held about six times during the summer with 12 women at each session. The focus of the weekend was "Receiving". It was an eye opener in many ways for me. It was all about taking care of ourselves; I thought I was pretty good at that. Guess not! We participated in several wonderful movement exercises, art experiences, musical therapy, massages, Reiki and had excellent presentations about interesting and inspiring topics. The people who put it on were knowledgeable and caring. I believe every woman (and man) needs to experience a similar weekend. We even had a Foot Fairy visit us at night to massage our feet as we fell asleep. The Sanctuary is set up with simple, yet darling, cabins and facilities. Most of our activities were held outdoors, which I thoroughly enjoyed. At the end of the weekend, I experienced little or no pain. I felt revitalized, peaceful and content. <br />
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<b>OCTOBER 9, 2011:</b><br />
I’m loving our warm weather. I’m feeling well except for my hands and feet. I thought I’d shaken the neuropathy in my feet, but it’s back. It’s worst in the morning or after I’ve been sitting awhile. There’s no doubt that walking reduces it’s hold. The acupuncture hasn’t helped my hands, especially my thumbs. Now my left thumb and hand hurt. That’s the hand where I had the IV for my test. The needle was inserted near where the meridian point is on top of my wrist. Wonder if that caused chaos to my body? It could likely stop an energy flow. <br />
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On Saturday I spoke at the Swan for Life Cancer Foundation’s Event at Crittenton Cancer Center, East of Crooks, north of M59. It was a very nice event. The decorations were beautiful (tables were set up by local merchants), the food was delicious and prizes were plentiful.<br />
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If you want to read my talk, it is listed under the tab, “<b>SFL Talk</b>” near the top of my Blog: http://josettawood.blogspot.com <br />
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I’m grateful to have you as my friend. I’m thankful for your prayers, good wishes and healing energy as well as your notes and cards. <br />
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I’ll be seeing Dr. Fata on Monday. Dr. Jasti moved to the Veterans Hospital in order to have more time with her two children. I met with Dr. Fata for the first time, a few weeks ago. He's an incredible listener and very knowledgeable. I've been fortunate to have doctors who communicate well. It sure helps to reduce frustration.<br />
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I'm planning to update my Blog regularly again to tell you about some of the great resources I’ve found in our area. <br />
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Blessing to all, JosettaJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com6tag:blogger.com,1999:blog-6111776941215424045.post-86401040612121326832011-05-03T23:15:00.000-04:002011-05-06T03:18:45.384-04:00Early May UpdateI'm sorry for the delay in updating my Blog. Much has transpired since my last entry. I've been busy doing lots of studying and learning and still going to doctor appointments. I've also had lots of feelings that I've been working through--disappointment, anger, abandonment, frustration and more.<br />
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I was concerned about a lump that I discovered in February. It was above my right breast (the side of my mastectomy). It was finally 'cleared' this week after seeing three doctors.<br />
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It’s been six weeks since my last treatment. Chemo side affects are like the Energizer Bunny--they just keep going and going... I'd hoped by now that the side effects from the chemo would be diminishing--some have increased. I knew that this was a common happening, but hoped that it wouldn't be true for me. I expect that I'll be seeing a change of direction soon.<br />
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I'm mostly able to do whatever I desire and am grateful for that ability. The side effects are discomforts and nuisances that take extra patience. I'm wanting to get back to my 'old' self and have a healthy body again.<br />
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<b>HAIR:</b> Not sure why, but these past couple of weeks I’ve lost a considerable amount of hair from my head even though I haven’t had a treatment for quite awhile. I thought that new hair would be starting to grow about now. I continue to believe: “There’s no such thing as a bad hair day as long as I have hair.”<br />
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This past couple of weeks I’ve also lost most of my eyelashes and most of my eyebrows. I’ve learned why we have eyelashes -- to prevent soap from getting into our eyes when washing our face. It took a few days for me to realize this as I wondered why all of a sudden I was regularly getting soap in my eyes.<br />
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I’m pretty much without body hair. Hey, there are advantages; no need to shave my legs or underarms for months. It’s interesting that there are a few stray hairs on my arms and legs--and I mean few -- 4 or 5. I’m getting used to seeing my reflection in the mirror and now recognizing it as me. It’s quite a change from this past Christmas.<br />
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Skin and hair follicles are fast-growing cells, so they were damaged along with cancer cells. As a result, think dry, dry and dryer. Showering doesn't take much time, but lubricating my body, face and hair takes twice as long. Yes, I use hand lotion on my hair (front and sides) because it's so dry (a tip from my hairdresser).<br />
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<b>MY HEAD:</b> Since my treatments ended six weeks ago, I've had to do a lot of 'head work'. At my first visit with my oncologist after chemo ended, I was expecting to learn about how I could help my body to 'repair' itself to pre-chemo status. There was no advice. I was told that 'in time' I'd get 'better'. I was hoping that my doctor would work with me to monitor my body and guide me with advice. No more blood work was ordered; it was assumed that my liver enzymes, white count and hemoglobin had all returned to normal levels. However, if I was having another chemo treatment the blood work would have been done to 'make sure' that everything was normal...<br />
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I think that thousands of people end chemotherapy treatments every day. I would expect that there would be a booklet, a handout, some information on how to help our compromised bodies return to a state of optimal health as well as how to monitor our bodies to know if something was going askew.<br />
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My doctor's protocol is typical of medical doctors. She's a caring, knowledgeable individual following the Standards of Practice of medicine. What I've come to realize is that medical doctors focus on treating us when we're ill, in pain or blood work isn't within a normal range. Specific advice for optimal health is not their focus. Yes, we're told: Eat a healthy diet, exercise, maintain a healthy body fat and weight, etc.<br />
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My oncologist's interest and focus was for me to begin taking Arimidex, an aromatase inhibitor. She highly recommends that I take it for five years. It works by decreasing the amount of estrogen the body makes. This can slow or stop the growth of breast cancer that is estrogen positive receptive (mine) that needs estrogen to grow. Common side effects are osteoporosis and reduction of HDL (good cholesterol). Our bones need estrogen for bone strength and our liver needs estrogen to produce HDL. A good website to learn more about estrogen and your body is:<br />
<a href="http://www.wcn.org/articles/treatment/hormone_therapy/estrogen_receptors/">http://www.wcn.org/articles/treatment/hormone_therapy/estrogen_receptors/</a><br />
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I was very disappointed. When I got into my car, I cried. I realized after a few days, I was angry. I felt 'abandoned' by the medical profession. I was seeking wellness, greater understanding and healthful living.<br />
When I pursued the topic, my doctor reminded me of the Swan for Life Foundation and their services--acupuncture, a dietitian, a counselor, etc. These are all 'outside' of the services medical professionals provide; they're not covered by insurance.<br />
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So for these past several weeks I've been staying present with my feelings and emotions as they arose and faded, no matter how uncomfortable it was for me. I did my best not to fight them or try to figure them out (analyzing or judging), letting them come and go in their own time. Letting go of resistance has helped me to move on...and open up. I've known: What I resist, persists. When I feel my emotions and give them a voice, I can move on. When I whine, I get stuck. I want to move on...no more whining!<div><br />
Only a small part of my cancer experience is about medicine. Most of it is about feelings and faith, losing and finding my identity and discovering strength and flexibility I never knew I had.<br />
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I have lots more I want to share with all of you and I will in future blogs. These past weeks I've mostly been reading and learning more about my body and how it functions and evaluating studies and information to come to a decision of what path I want to pursue for healing of my body.<br />
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Many of you have commented about my 'positive attitude' and how that is of great value to my healing. I agree. I've come to the conclusion that no matter what decision I make--as long as I believe it is the right one for me--it will be successful. So, again, I'm back to working on my head to embrace fully the decisions that I make.<br />
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</div><div><b>THANKS:</b> Again, I thank all of you for your prayers, good wishes, uplifting words, encouragement and healing energy. Your thoughtfulness and concern has been overwhelming. I have been touched beyond measure. I'm blessed by your graces.<br />
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I'm continuing to work at answering your emails. <br />
love and hugs, Joey/Josetta</div>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com4tag:blogger.com,1999:blog-6111776941215424045.post-4401864531733523342011-04-11T13:24:00.000-04:002011-04-11T13:24:20.109-04:00Chemo Complete<b>Saturday:</b> April showers bring May flowers. This is a time of believing...that Spring will arrive in Michigan! It's April 9th (our granddaughter's 11th birthday) and we barely have any signs that Spring is on it's way. Our few crocus, that Cathy planted almost thirty years ago, have finally popped up and look like they'll be blooming today. Weather people are predicting that we'll have sixty-degree weather this weekend. Most Michigan residents are waiting expectantly.<br />
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<b>Decision</b>: A week ago Thursday I met with my doctor and made the decision to end my chemotherapy treatments--after four sessions. Originally, my doctor had hoped for six with an evaluation after four. She's pleased with four, which is a common regimen for the type of chemo treatments (TC) that I received.<br />
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I was having a difficult time watching the deterioration that was happening to my body that was accumulating with each session. Because my chemo was for preventative reasons and because there is no way of knowing whether there were cancer cells in my body and if so, which chemo treatments would be effective for me (it's all statistics); I decided that if four treatments didn't do it, two more probably wouldn't make that much more of an impact. I did know that the deterioration of my body would continue with two more sessions. Chemo only treats cancer cells present in the body. It does nothing to prevent future cancer cells from forming and developing. I've decided I'm going to be the statistic that survives. I'm going to do my best to help my body to do it's job of functioning properly.<br />
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It was not a difficult decision for me to make because my gut feeling was so very strong. During my 4th session, I had another reaction to the Tamoxifen--it felt like my body was rejecting the chemo. I have only had a few regrets in my life--all based on not following my strong gut feeling.<br />
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After hearing talks by the Dietitian from Swan for Life (Sharon Meyer) and speakers at Gilda's Club (Bharat Aggarwal, PhD), I've decided to spend the next several months building up my body so that it can be effective in doing it's job of stopping cancer cells from growing and then continuing with a maintenance program. Although I ate a very good diet before my cancer was discovered and exercised regularly, I've learned more about preventing inflammation which is a critical component of tumor progression.<br />
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These past few weeks I've been spending a few hours each day reading studies from respected universities, cancer centers and the National Cancer Institute. There are many reputable studies showing that diet, spices, herbs, etc. along with exercise can support our bodies to take care of themselves. I'll work with my doctors to go that route. In recent decades, I've had a healthy diet and have exercised regularly. Unfortunately, hormone replacement therapy (HRT) was part of my regimen. The tumor taken from my body showed that it was 99% estrogen receptive positive. The estrogen contributed to the growth of the cells in my breast. Also, because of an accident that I had in 1990 when my jaw was injured and my teeth were moved; I've taken fluoride treatments 3x/year to prevent cavities. That was another contributor to dysfunction within my body.<br />
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I've done a lot of reading about chemo sensitivity testing (would a specific chemo respond to or be resistant to a specific tumor). Unfortunately, these tests need fresh tumor samples, so for most patients that isn't possible (the surgery is complete). These tests are more commonly done in Europe although there are some being done in the U.S.. It would have been a major help to know that the chemo I was taking would work against cancer cells in my body and eliminating chemo treatments that were resistant would have been wonderful.<br />
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There is much successful research going on using chemo and targeted hormone therapy to shrink and eliminate tumors before surgery. The chemo can then be evaluated as to whether it's doing it's job. Unfortunately, most cancer patients have surgery first, without knowing that there could be an option. If you have a tumor of 2mm or larger, consider visiting an oncologist for a second opinion before surgery.<br />
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I've also been doing in-depth learning about how our bodies function. Our bodies are incredible machines: mechanical, biological, chemical, electrical and all systems are intertwined. It's amazing what the body can do to make corrections to 'problem areas'. Unfortunately, very often these corrections can cause other problems. Much has to do with what we put into our bodies via food, the environment, chemicals and medicines.<br />
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I want to mention that Medical Doctors (MD's) have to conform to "Standards of Practice". Even though my doctor was supportive of my decision to end my treatments, she first had to say to me, "I cannot recommend that you stop treatments because you have been able to tolerate the treatments." She then talked immediately about why she agreed with my decision. Doctors have to first suggest what is the "standard of practice". Know that there can be options and that your doctor can provide those options. Ultimately, you are in charge of what happens to your body.<br />
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One last thought: I saw a short segment on Bloomberg West TV this past week about the Oncotype DX test that I had done that predicted that I would be at high risk of recurrent cancer (distant recurrence within 10 years) and that chemotherapy would reduce that risk by 12%. The test is based on genetic testing done on tissue taken from the tumor during surgery. ( http://www.bloomberg.com/video/68372624/ )<br />
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The Oncotype DX<br />
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I'm not completely convinced that these tests are as accurate as they're assumed to be. I wish there was a study or results which showed the accuracy of their predictions. I haven't been able to locate any studies. I'm going to ask Dr. Jasti if I'll be part of a followup study--or if there are any studies for followup.<br />
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I'm feeling mostly well with a fairly high energy level. My stamina is reduced. I have some peripheral neuropathy (nerve damage in hands and feet) from the chemo and some respiration issues that are gradually being reduced. My nails, skin and hair follicles have been damaged. The results of the fourth treatment will show themselves later this week. No mouth sores, digestive/reproductive tracts issues. Overall, I'm doing very well. I'll continue flushing my system with water and taking probiotics for another week.<br />
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<b>Sunday</b>: The temperature in Rochester Hills reached 80 degrees. Spring has arrived...or we skipped it and went directly to Summer. We've experienced that before in Michigan!<br />
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<b>Future:</b> I intend to continue my blog with more specific information about diet and it's influence on cancer and other diseases and methods of reducing inflammation in our bodies. Also, I've taken a great interest in our foods today and how they're different than the foods I had as a child. I'll include respected web sites and books for those who want more information.<div><br />
Healthy and delicious! That's my new mantra. I'm feeling well and focusing on getting my body in prime condition to take care of itself now that I've completed my chemotherapy treatments.<br />
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Again, thanks to all of you who responded with 'what's going on in your lives'. We've enjoyed hearing from so many of you. I have your emails marked and intend to followup. Thanks also for the beautiful cards, your caring words, your prayers and good wishes and lots of healing energy that's been sent our way. It's been a humbling experience for me. You've all made my journey much less difficult and much more beautiful. </div><div>warm regards, Joey/Josetta<br />
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<b>Spring, a time of new life!</b></div>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com3tag:blogger.com,1999:blog-6111776941215424045.post-76054436635865809942011-03-29T12:35:00.000-04:002011-03-29T12:35:27.923-04:00Session Four: Day 5Hi All,<br />
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I spent the better part of yesterday updating my blog. When we returned from Gilda's Club last night I was ready to do the final 'touch up' and send it out. Just before I finished, all but the last two lines disappeared. I spent about an hour and a half, reading 'help' info and finally acknowledged, "My words were not to be recovered."<br />
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Here's a very quick synopsis: Thursday was Treatment 4. I had another allergic reaction to Taxotere in spite of a 15% reduction and slower infusion. It was handled very well by the oncology staff. It was a long day, we started at 11:00am and left the center a little after 5:00pm with four more hours of cold caps needed at home. I felt good and was able to eat a Middle Eastern Restaurant take out.<br />
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Day 2: Friday was good. I mostly felt well, did some chores around the house, got my Neulasta shot around 4:30pm and walked afterwards. We limited our walk on the golf course to a little over a mile because it seemed like the prudent thing to do--although I felt fine, enjoyed being outdoors and chatting with Betsey.<br />
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Day 3 (Saturday): I woke up feeling like Raggedy Anne--no/zip/zero energy and achy. I tried my best to convince myself that I needed to get some exercise even if it was walking up the stairs, across the house and back down--couldn't make myself do it. This was one of those "One Day at a Time" days.<br />
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Day 4 (Sunday): I woke up feeling like I was going to live. Today was better, a little more energy and less aches. I'm feeling like a wimp. The most difficult part of this is watching what the meds are doing to my body. I struggle with how this can help me to get better. It's the Neulasta shot that seems to be the toughest on my body.<br />
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Day 5 (Monday): I'm feeling much better and know that I'm 'going in the right direction'. I attended a talk in the evening at Gilda's Club (Royal Oak) on Inflammation. It was excellent. I'll write more about it later this week.<br />
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Day 6: (Tuesday): I'm doing well. Don has a routine cardio checkup today. I'll be going with him and then doing some needed grocery shopping.<br />
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Here's a note that was sent to me both Saturday and yesterday from a website that I subscribe to: (I've never received the same note twice before and have found no pattern as to how often they're sent).<br />
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"On this day of your life, dear friend <b>...that any frustration you have is simply the result of wrong thinking.</b> If you were thinking rightly you could not possibly imagine that anything was going 'wrong.' You would know that nothing in the Universe is working against you. By definition, given Who You Are, this is impossible. Move, then to gratitude when you encounter your frustrations. And see every event as an Opportunity. You know exactly why you received this message today.<br />
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So, I've changed my thinking, accepted Saturday and yesterday's frustrations as opportunities--which I already know they have been. It's amazing what a change in words can bring.<br />
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A BIG thank you to all that wrote to tell me about what's happening with yourselves and your families. We thoroughly enjoyed hearing your stories. I hope to respond to them later in the week. Some were especially interesting and have piqued my curiosity.<br />
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I plan to write about some new things I've discovered that have helped me during my tough days. I'm learning much about my body and ways to help it to take care of itself--not something that I was searching for...but certainly worthwhile knowing.<br />
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Hope all of you are doing well and enjoying the beautiful sunshine that we've had these past several days. We're so fortunate that the sun shines into our home through different windows depending on the time of the year and the time of day. It's a huge uplift when I've been confined to the indoors.<br />
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Thanks for you prayers, good wishes, positive energy and hugs--they're working. regards, Joey/JosettaJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com2tag:blogger.com,1999:blog-6111776941215424045.post-59494199950372365382011-03-23T09:35:00.000-04:002011-03-23T09:35:48.151-04:00Session 3: Day 15Hi All, <i>(this was written over the past ten days)</i><br />
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Hope all of you in Michigan are enjoying our almost 60-degree weather. I believe that Spring is just around the corner. My pansies have started growing and life is returning to our part of the world. Today the rain is nurturing growth. I know, I'd rather have the sunshine but too much of anything doesn't work. My Dad's mantra was, "Everything in Moderation". I agree with his observation even though I'm not a fan of rainy days.<br />
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<b>I've been doing well this session.</b> My blood work early on showed that my liver was doing much better--only one enzyme slighted elevated. I've had some peripheral neuropathy in my fingers and feet, more this time than previous sessions. I've found that walking and exercising relieves some of the symptoms of numbness in my fingers and the strange sensation in my feet (they feel like they're rounded and challenge my balance when walking).<br />
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I've also had some respiratory changes this session. When I'd take a deep breath it was difficult, I'd have a need to cough. I started using the "breath exerciser" every day that I was given in the hospital after my breast surgery in November. I also drank a large pot of tea every day -- a mixture of green tea and "Breathe Easy" herb tea. The tea relieved my symptoms considerably.<br />
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This session: NO bloody noses, no sore throats, no intestinal tract issues, no reproductive tract issues. YEA! I attribute that to taking probiotics religiously--more right after my treatments and gradually tapering off. I mentioned in a previous blog that I'm taking capsules containing "billions" rather than "millions" of good bacteria that we need in our guts. Detroit Public Television (channel 56) has a great show explaining The Road to Perfect Health with Brenda Watson, March 26, 11:00am explaining the importance of probiotics for good health. <br />
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I''m also experiencing less stamina/energy--although I am probably still at a normal level for most 69-year-olds. I'm tired at the end of a day. On the days when I walk (usually two miles), not much gets done after dinner except relaxation. That's much different for me.<br />
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I've learned to start the day with things that are important to me--when I have the most energy. As a result, I've been going through photos on our old computer and saving special ones on to DVD's. It's been a joy to view photos and recall many gatherings and vacations of the early years of this century. I'm also organizing my computers and doing needed backups. I've been doing the same with paper files. I'm no where near "done", but working at it.<br />
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I'm putting together a photo collage, "The Wood Family 2010". The finished product will be 20"x30". I can use up to 30 photos. I'll have it printed at Costco. I've gone from 4,500 photos to 200...only 170 more to eliminate! <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBvCyyK2NGQN8jMGLlvY2oftVnHObyRDsKwN92sY_8UYBfwr9_KYRYi80KMmWn2ijKCM8-vafSfGod7BouhrcvwJ_5-v8Af8UQNC2d9GfTUKfCAUtO6ic1w5NQ6i8Zv8QvF2GDiNtnRNKG/s1600/narrowboat.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBvCyyK2NGQN8jMGLlvY2oftVnHObyRDsKwN92sY_8UYBfwr9_KYRYi80KMmWn2ijKCM8-vafSfGod7BouhrcvwJ_5-v8Af8UQNC2d9GfTUKfCAUtO6ic1w5NQ6i8Zv8QvF2GDiNtnRNKG/s1600/narrowboat.jpg" /></a>I'm also working on two photo books: A vacation that I took in 2007 with seven other women on a NarrowBoat (60' by 6'6") when we cruised the Stratford-Upon-Avon Canal of England--which was surrounded with wild flowers, baby animals, ducks, swans and beautiful countryside filled with charm and character. The canal has towpaths that were used by the horses which pulled the original boats 200 years ago when the canals were built. We had to pilot the boat by ourselves (I was known as "Tiller Girl) and open and close the old manual locks (7' wide), fill or empty them, do our own cooking, etc. It was certainly a challenge and an absolutely wonderful experience. I was the only gal from the U.S. It's titled, <b>"A Narrow Boat and a Gaggle of Women"</b>.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPpYquwVWNr2UeG7YrlCIFB7Y14XKbcjJPycQFvwuhw-ADq_HDDR1J2Gq1UtT_VLSr4Z-hQfea0csoizYCY5RHpw4qFJF_YcIwtOoeJVWgOM2x_gpjA0ZeWhE0g9tUA6ZtOQYEFmGIZFH3/s1600/2010Sophie.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPpYquwVWNr2UeG7YrlCIFB7Y14XKbcjJPycQFvwuhw-ADq_HDDR1J2Gq1UtT_VLSr4Z-hQfea0csoizYCY5RHpw4qFJF_YcIwtOoeJVWgOM2x_gpjA0ZeWhE0g9tUA6ZtOQYEFmGIZFH3/s200/2010Sophie.jpg" width="150" /></a>The 2nd book I'm working on is <b>"Sophia, 2010"</b>--her visits with us. I've been pretty good about doing a book a year for her. When Sophie moved out of state when she was two, a friend suggested that I put together a photo album after each visit as a reminder of good times together. I thought it was an excellent suggestion since much of what I remember from my childhood is based on photographs. Gradually I changed from photo albums to photo books that I put together on my computer and have printed by VioVio.com or Blurb.com.<br />
<br />
I'd also like to do a photo book of our car trip to California and back that Don and I did in the fall of 2009. I kept a blog so all the photos and words are organized and 'ready to go'. The last photo book that is 'calling me' is my one month I traveled in Morocco. It was an incredible experience filled with wonderful, unusual adventures--the five days in the desert were memorable along with the people, architecture, food and bazaars.<br />
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<b>So, what's keeping all of you busy?</b> I'd love to hear your stories. Send me an email or respond to this post. Thanks to all who have been doing that. I'm reading all of your emails and gradually responding.<br />
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I had my doctor's appointment yesterday (Tuesday). My blood levels were good--white blood cell count in the normal range, hemoglobin slightly below the low range. The liver tests will be available this afternoon. She also did a test that has something to do with fluid retention thinking that might be connected with what's going on in my lungs. I also had a chest x ray yesterday. I just read that the Neulasta shot that I get the day after my chemo treatments to boost my bones to produce more white blood cells can cause respiratory problems. Like most of life's choices--there are advantages and disadvantages...<br />
<br />
My next chemo treatment is tomorrow (Thursday). Dr. Jasti is reducing the amount of Taxotere that I get by 10/15%. It's the Taxotere that causes most of the permanent side effects. It also will be given at a slower pace to prevent an allergic reaction.<br />
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Hope all of you are doing well, staying healthy and enjoying each day. Thanks again for all your prayers, good wishes and wonderful energy that you're sending our way. <br />
warm regards and hugs, Josetta<span class="Apple-style-span" style="color: white; font-family: Arial, Helvetica, sans-serif; font-size: 12px;">ntryside, and past pubs, cottages and warehouses.</span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-89283641321031417262011-03-07T12:58:00.000-05:002011-03-07T12:58:38.014-05:00Rochester Relay for Life Research Project (CPS-3)<div style="text-align: center;"><b>How many times have you said, "I wish I could do more"? Well, you can!</b></div><br />
The American Cancer Society Relay for Life of Greater Rochester is gearing up for it's June 25/26 fun and fund-raising program at Hart Middle School.<br />
<br />
<b>Research Study CPS-3:</b><br />
This year the Rochester Relay for Life will offer community members a unique opportunity to enroll in a new research study called the <b>Cancer Prevention Study-3</b> (CPS-3) at the event. The American Cancer Society is inviting men and women between the ages of 30 and 65 years who have never been diagnosed with cancer <span class="Apple-style-span" style="font-family: Arial, Helvetica, Verdana, sans-serif; font-size: 13px;">(not including basal or squamous cell skin cancer)</span> to join this historic research study. The study aims to enroll adults from various racial/ethnic backgrounds from across the U.S.<br />
<br />
Individuals need to be willing to make a long-term commitment to the study. Those who choose to enroll will complete a brief initial questionnaire and provide a waist measurement and a small blood sample. Participants will periodically be sent a follow-up questionnaire for the next 20 to 30 years. By joining CPS-3, participants can help the American Cancer Society understand how to prevent cancer, which could save lives and give people more of their most precious resource--time.<br />
<br />
I highly encourage you to take part in this research project. Hart Middle School is located at 6500 Sheldon Road, Rochester Hills, 48306 (east of Rochester Road and north of Tienken). Enrollment for the Research Study CPS-3 will take place <b>Saturday, June 25, 2011 from 4:00pm - 8:000pm</b>. Or contact, <b>Katie Brennan at 248.663.3436</b><br />
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For information regarding enrollment for the CPS-3 study at the Relay for Life of Rochester Event, please email: <b>cps3.rochestermi@gmail.com</b>. For more information on the study itself or to find other locations across the U.S. with 2011 enrollments, visit <b> http://www.cancer.org/cps3</b> or call toll free: 1.888.604.5888.<br />
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The purpose of the study is to better understand the factors (lifestyle, environment, genetic) that cause or prevent cancer. Do your part to further efforts in eliminating cancer as a major health concern for future generations! hugs, JosettaJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com4tag:blogger.com,1999:blog-6111776941215424045.post-9185880216901545482011-03-07T11:56:00.000-05:002011-03-07T11:56:57.586-05:00Session 3: Day 5Hi All,<br />
<span class="Apple-style-span" style="font-family: Helvetica;"></span><br />
<span class="Apple-style-span" style="font-family: Helvetica;"><div><div>THANKS for your encouraging words of hope...and your blessings and prayers.</div><div><br />
</div><div><div>I've had a couple of rough days Saturday and Sunday. I'm feeling this morning like I'm starting to get over the hump. Each time it's a little different -- I get through something that challenged me the previous session and then hit another head on. I mostly slept, drank, went to the bathroom, watched a little TV, repeat, repeat... I had a little fever and was weak and tired. At least I'm content sleeping and laying around -- that's pretty amazing for me! </div><div><br />
</div><div>During the night, my heart kept racing so I did my best to 'settle myself down' using meditation, breathing, etc. without much success. I finally decided to say the rosary...that did it! Each time I'd get up to use the bathroom during the night, I'd go back to where I thought I left off. I think I maybe got through the whole rosary. Wow, that's sure different for me.</div><div><br />
</div><div></div></div></div><div>This morning I looked through a magazine, "Backyard Living" that I picked up at a doctor's office. It was filled with great easy planting ideas for spring...a real inspiration. Yes, this weekend we go on daylight savings time--days are flying by. Whew! Halfway through...I'm considering looking at stopping at 4 rather than 6. We'll see; I don't need to make that decision now.</div><div><br />
</div><div>Thanks for your wonderful prayers and uplifting words. They're an incredible source of hope and love for me. Josetta</div><div><br />
</div><div><i>"Sometimes I have to be grateful for the graces I receive, even if they aren't exactly what I had in mind."</i></div><div><br />
</div></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-63711648222308819692011-03-05T14:59:00.000-05:002011-03-05T14:59:28.978-05:00Treatment 3: Day 3Hi All,<br />
<br />
I'm doing well, even better than last session on my third day. I had my chemo treatment on Thursday. I had an allergic reaction to the Taxotere drug. I was talking with Don and felt like the band from the cold cap that was under my chin was getting tight. Then I started to get pain from my crotch upward through my abdomen. I realized that something was happening and Don got a nurse who came in right away and stopped the drug. The pain also went to my back and was very strong. I was injected with benadryl and a steriod which stopped the escalation of the pain and gradually diminished it. Fortunately, a solution came before there was time for panic to set in! Wow, again I'm impressed with the staff, their attention and knowledge.<br />
<br />
After waiting about twenty minutes, the Taxotere was started up much slower along with a saline solution. All went well after that. Cathy and Don were there to change my cold caps every 30 minutes. Cathy had a one-hour conference call with work during that time. Thank goodness for technology (and her knowledge of it) -- and her ability to multi-task!<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEim-sXBdc9_rrpKn47ajlzORgYpBsVMIRUavd7JvHOUtGRenP2wHMxcnAm29pCY45CCDuJ15sbLCYrQKh1ZPbySsHPAdYsr3MjUaLXla4oHZYqcmnecoQfLQ0i1Fqos-469T2UOSuXAjbj1/s1600/Dammit+Doll.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEim-sXBdc9_rrpKn47ajlzORgYpBsVMIRUavd7JvHOUtGRenP2wHMxcnAm29pCY45CCDuJ15sbLCYrQKh1ZPbySsHPAdYsr3MjUaLXla4oHZYqcmnecoQfLQ0i1Fqos-469T2UOSuXAjbj1/s320/Dammit+Doll.jpg" width="240" /></a></div>I was given a Dammit Doll: "When you think you want to climb the walls or stand right up and shout, Here's a little DAMMIT DOLL you cannot do without. Just grab it firmly by the legs and find a place to slam it. And as you whack the stuffing, just yell, "Dammit, Dammit, Dammit!" I could have used this a month ago!<br />
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When we got home, Nance joined us to learn how to put on the caps in case Cathy was ill or unable. As she left, Cathy's friend, Amy, joined us to learn, too. By 8:00pm when we finished, we all were tired.<br />
<br />
Yesterday went well with a long-time friend's son visiting to see if Don could do some patent drawings for an incredible invention that he's working on. It was a delight to spend time with him. I've known him since birth but as he's grown, only had the opportunity to be with him in group settings. He's one good person with his head on very straight and a wonderful heart. <br />
<br />
I went to the doctor's office for my usual day-after Neulasta shot that helps my bones to produce white blood cells that boost my immune system. So far it's been working well. This time my hemoglobin was just out of the low range. I'm eating lots of protein to maintain my energy (eggs, poultry, meat, dairy, beans, nuts, fish and whole grains). It's something that can gradually get worse with each treatment that I want to avoid.<br />
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Later in the day, our good friends joined us for dinner. We had a wonderful time together chatting and catching up with our lives and viewed Donny's photos of Autorama on our big TV screen.<br />
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Today, I'm doing well. I'm avoiding Aleve and Motrin if I can, since it can be taxing to my liver. I'm feeling okay even though many patients complain of aches and pains from the Neulasta shot.<br />
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My friend, Sharon, sent me a book called, "My Healing Companion". It says Compliments of Roche Laboratories, Inc. on the back. I went online and found that it is only available through a Roche rep. I'm going to mention it to my doctor's staff so that they can get it for other patients. It's a book for journaling and exploring thoughts and feelings with introductions on Why Me? (positive turning points in my life), I'm Overwhelmed by Anger (my anger, sadness and fears), I want to be Positive (turning negatives into positives), Whom can I Talk To? (who can I ask?), etc.<br />
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It's very well done with beautiful prompts and lots of room for writing, drawing and exploring. I look forward to using this journal to help me learn more about myself and to heal me in many ways.<br />
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Thanks for sticking with me through my journey. Keep sending your prayers, healing energy and good thoughts. They are (along with you) what are keeping me going so well. hugs, Joey/JosettaJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com4tag:blogger.com,1999:blog-6111776941215424045.post-51845015161118777582011-03-02T15:00:00.007-05:002011-03-02T21:43:32.608-05:00Test ResultsHi All,<br />
I saw my oncologist on Monday to get my test results from Thursday's ultrasound and blood work. The ultrasound of my abdomen showed all my 'parts' to be normal in size, texture and no stones; medical term is: abdominal organs are "unremarkable". They looked at my liver along with my pancreas, bile duct, aorta, kidneys and spleen. That was GREAT news!<br />
<br />
My blood work that was taken last Thursday showed that my Total Bilirubin and Albumin were well within normal range (they've been normal since I began). My Alkaline Phosphatase has dropped considerably, almost to the normal range. My AST (formally called SGOT) has also dropped to almost normal range. My ALT (formally SGPT) has dropped but is still slightly elevated. My doctor says the Taxotera chemical that is given to me during my treatments is most likely the culprit. (NSAID's can also cause liver damage. I took two Aleve and three Motrin pills this past three weeks--not enough to do damage.) We decided to postpone my 3rd chemotherapy treatment to Thursday (tomorrow) believing that by then all my tests would continue to decline and be in the normal range. Dr. Jasti will closely watch my liver enzymes following this treatment.<br />
<br />
I needed a few days to 'get my head in order' for another treatment. Of late, I've been reading a lot of information about alternative and complementary medical treatments for cancer. In the process I read a lot about how chemotherapy 'poisons' the body. I also read much about how to build up my body and take advantage of eliminating cancer cells in the body through chemotherapy. This evening I plan on taking time to do some imaging of what I expect my treatment to do.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIcUU-u2Pvn06EkPs3zPiKctQZVXC3RatwWUUkKwVmlZaUAzpL0oWOkF2BivrOhsKU3vTefI0a9WRQebo5xrzrSfq5ABGXw9rBIc8rld2Wqi5pIk71s9PLEYeHkG4JqDVrUxiXCzY6keoe/s1600/P9126970+MdDonald+Creek.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIcUU-u2Pvn06EkPs3zPiKctQZVXC3RatwWUUkKwVmlZaUAzpL0oWOkF2BivrOhsKU3vTefI0a9WRQebo5xrzrSfq5ABGXw9rBIc8rld2Wqi5pIk71s9PLEYeHkG4JqDVrUxiXCzY6keoe/s320/P9126970+MdDonald+Creek.jpg" width="320" /></a></div>I've been using rushing water as my image; seeing the water wash away any cancer cells that might be in my body. Shooting or killing cancer cells didn't work for me; I've gotten passive in my old age and find those images to be combative and hostile--not my way of solving problems. All the small pebbles (cancer cells are being washed away) and the larger rocks (my other cells) are being smoothed and polished.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOAZNB7Cc5VuI5nCtGj44TOHia4HrtWmmMRZM3hokgduGLYjDV7X1a9ejgWyNIOl_o3D7oN7_TxSsYrhbLU6qnyzszJVfQJTHZ1654F60IeoDQIwycMENj74js7z67gcfBMVj4biSEe9cH/s1600/Joey+New+Hair.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOAZNB7Cc5VuI5nCtGj44TOHia4HrtWmmMRZM3hokgduGLYjDV7X1a9ejgWyNIOl_o3D7oN7_TxSsYrhbLU6qnyzszJVfQJTHZ1654F60IeoDQIwycMENj74js7z67gcfBMVj4biSEe9cH/s200/Joey+New+Hair.jpg" width="181" /></a></div><div style="text-align: left;">In my last post I mentioned that I had a <b>new hair do</b>. I met a long-time friend over the weekend and she wasn't sure it was me, although she did know me when I had short hair. I had Don take a photo of me, so if you see me somewhere, you'll know it's me! </div><div style="text-align: left;"></div><div style="text-align: left;"><br />
A wonderful friend, Sandy, who lives in the U.K. sent me a calendar that she made for 2011. I thought you'd like to read some of her comments for March: <b> "Drink champagne for no reason at all."</b> <b>"Learn to laugh at yourself"</b> and <b>"Give warm hugs!"</b> She also added this one by Lady Bird Johnson, <b>"Where flowers bloom, so does hope."</b> Spring is coming, plant some seeds/flowers and time to renew your hope! I believe that there is no such thing as 'false hope.' Go for it!</div><div style="text-align: left;"></div><div style="text-align: left;"><br />
Sandy designed and compiled the calendar for <a href="http://www.natandy.com/">NATANDY Fund</a> (http://www.natandy.com) which she and other family members established in memory of her daughter and son-in-law (Natalie and Andy) who lost their lives in the 2004 Asian Tsunami while on their honeymoon. The funds are used to support the rebuilding of the lives of the people of Thailand, particularly those on the Island of Phi Phi, and with special emphasis on helping young people.</div><div style="text-align: auto;"><span class="Apple-style-span" style="color: #00007f; font-family: Verdana, Arial, 'Times New I2';"><span class="Apple-style-span" style="font-size: x-small;"><br />
</span></span></div><div style="text-align: left;">I'll leave you with the words on the back of the calendar:</div><div style="text-align: left;"><br />
</div><div style="text-align: left;"><b>Happiness is a journey, not a destination...</b></div><div style="text-align: left;"><b> </b>For a long time it seemed to me that life was about to begin--real life, but there was always some obstacle in the way, something to be gotten through first, some unfinished business, time still to be served, a debt to be paid.</div><div style="text-align: left;"> At last it dawned on me that these obstacles were my life... This perspective has helped me to see there is no way to happiness, happiness is the way. </div><div style="text-align: left;"> So treasure every moment you have and remember that time waits for no one. -Souza<br />
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<b>Thanks to all</b> of you for your prayers, good wishes, healing energy and cards and emails. It's all of you who are carrying me and making my journey so very pleasant. Blessings and hugs, Joey/Josetta</div><span id="goog_793972575"></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com2tag:blogger.com,1999:blog-6111776941215424045.post-53992929647151908152011-02-27T14:08:00.034-05:002011-02-28T08:42:45.545-05:00Hair and moreHi All,<br />
It's been a pretty darn good two weeks. I'm doing even better than I did in my first session.<br />
I've hit the probiotics hard this time and have avoided mouth sores, sore throat and other uncomfortable reproductive and digestive tract problems. I bought some Colon Health from Costco that have "billions" of whatever those good little bugs are that need to live in our tracts. They're working well . I've slacked up on rinsing my mouth with salt water ever time I eat, with no consequences. Life is more normal...<br />
<br />
Last weekend I had a bug or pushed my body a little too much. Betsey and I walked on Saturday afternoon on the golf course in the wind for a long time (she said we walked four miles). Sunday morning I woke with a fever and was content to sleep most of the day except when I was watching TV (not like me at all). By Monday afternoon the temp was gone and I was beginning to feel more like my usual self. Tuesday brought back my energy and stamina. It was another good week. I am so very grateful...<br />
<br />
My tests have shown an elevation of liver enzymes. This past Thursday I had an ultrasound of my abdomen and repeated the liver tests. I'll meet with Dr. Jasti on Monday (tomorrow) to go over the test results. I'm scheduled for my next treatment on Tuesday of this week. I've decided that I'll postpone my next treatment until my liver enzymes return to normal. I'm not willing to risk liver damage from chemotherapy at this time. I keep reminding myself that this is preventive treatment that I'm undertaking.<br />
<br />
The Neulasta shot that I get the day after treatment is working well. My white count was high the first week and stayed within the normal range the following two weeks. That's great news and probably one reason why I'm feeling so well. Also, I've included lots of protein in my meals (fish, chicken and a big steak) and have kept my hemoglobin well within the normal range.<br />
<br />
<b>No such thing as a BAD HAIR DAY!</b><br />
A couple weeks ago I lost about 20/30% of my hair in the area where a man would wear a yarmulke (yamaka) cap on the top/back (crown) of his head. We think it's because the cold caps were too cold on my part-line and cowlick areas where there was no hair to protect my scalp from frostbite. This second session we used gauze to protect my skull and all seems well.<br />
<br />
Anyway, I cannot see the area, so I'm okay with it. The front, sides and bottom back of my hair are completely intact; however, there is a lot of gray hair under the streaks of color. Because my hair follicles are weak, I do not use a blow dryer, curler or straightener. I gently wash my hair only a couple times a week (it's dry from the chemo) and use no styling gel or hairspray. So, it's pretty much "wash and wear". I had my hair cut short so it would be easier to take care of. As a result, I look different. My hair has a natural wave to it and the gray makes it look much lighter in color.<br />
<br />
Hey, as I said above, "There's no such thing as a BAD HAIR DAY!" As long as I HAVE hair, "It's a GOOD HAIR DAY!" I'm taken by how easy it is to change my attitude to what's happening in my life.<br />
<br />
When I talked with friends who lost their hair, many said, "With no hair, when I looked at myself in the mirror, I looked sick -- ill, meaning that I look like someone who is dying." I could identify with their thoughts.<br />
<br />
Another friend said that she thought it would not be difficult to lose her hair and that it would be fun to try out different wigs. That might be true, except I know I wouldn't be wearing a wig to bed at night and when I got up to use the bathroom and saw myself in the mirror, I could easily see myself as ill -- not as the healthy person that I am. Also, wearing a wig or hat all the time could get to be "old stuff" for me very quickly, especially when the warm weather comes (yes, it's going to come to Michigan!). As it is, I don't like anything tight on my head for any length of time. I'm so very grateful to have my hair -- no matter how it looks!<br />
<br />
With the chemo that I'm taking, the hair loss would take place every treatment--usually near the end of the three week cycle. The follicles would be damaged, so new hair growth would take place a couple months after all treatments have ended. With six treatments, that could mean early June before my hair STARTED to grow back -- that's a very long time. Healthy hair grows about 1/2 inch per month. At that rate, it would be well into Fall before I'd be starting to have a hair style. In the meantime, I'm a happy camper with hair on my head!!! A friend, Nance, is going to join Don and Cathy at my next session to learn how to do the cold caps in case one of them is ill and not able to help.<br />
<br />
I'm touched by so many incidences that take place in my life. Just when my hair was coming out in huge amounts, I remembered Christina (my hairdresser) telling me about a store that carried hair pieces/wigs that she stopped at before coming to work that day.<br />
<br />
It was Valentine's Day and Don and I had to go to our credit union which is only a couple miles from the store, so we stopped by. The store is called, Hair Secret at Universal Mall (12 Mile and Dequindre inside of the Cinemark theater). It's an incredible store filled with wigs (cranial prosthesis), extension hair, hair pieces, hair care products and accessories -- more than I could have ever imagined in one store. Their prices were reasonable and their selection incredible. I purchased a human hairpiece that fits on the crown of my head. It's very comfortable to wear and looks really good. The young gal was extremely helpful, caring and knew her products. As I looked in the mirror and saw myself looking even better than before I started treatments, I cried tears of joy! I was touched with how every time something challenging comes up during treatment, a solution follows quickly. I'm humbled and in awe...<br />
<br />
My new hairpiece is something that I might continue to use in the future when my hair returns. I only use it when I'm going somewhere special (like last night when the kids and we were together celebrating Jeff and Cathy's birthdays). Otherwise, I'm very comfortable being out with my own hair.<br />
<br />
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"><b>Dry Ice</b></div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">When we do the Cold Caps during my therapy, we fill two coolers with dry ice and then put the eight caps that are in plastic boxes in the coolers to take them down to -30C. At the end of the day, we have most of the dry ice (about 60 pounds) left over. Does anyone know of a school or any place else that could use this dry ice? It seems a waste to let it evaporate each month. Dry ice can be dangerous if not handled properly. It's imperative that if someone wants to use the dry ice that they be knowledgeable about it's use. Contact me if you have a use for the dry ice.<br />
<br />
I know for many in Michigan our February snowfall has made commuting difficult especially during rush hours. For Don it's brought more exercise and muscles (shoveling). Since I'm pretty much homebound, it's brought a beauty to the outdoors that I enjoy; although, it was a real treat to get a glimpse of our green grass last weekend. Stay healthy, stay warm, enjoy, laugh and love. warm regards, Joey/Josetta</div>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-47807942431672536722011-02-13T22:47:00.000-05:002011-02-13T22:47:13.174-05:00Session 2: Day 6<b><span class="Apple-style-span" style="font-family: inherit;">Cleaning for a Reason:</span></b><br />
<span class="Apple-style-span" style="font-family: inherit;">Hi all, </span><br />
<span class="Apple-style-span" style="font-family: inherit;">A BIG thanks to all of you that sent the info for "Cleaning for a Reason". I've gotten at least twenty emails. "Cleaning for a Reason" is a non-profit organization that cleans homes of women receiving chemotherapy. Just before my surgery I asked friends if they knew anyone that I could hire to help me out while I was recuperating. An AAUW buddy said that she thought her neighbor, Patti, would be perfect. She was right. Patti started the day of my surgery and has been helping us every other week since then. Little did I know that I'd need her for so long. She's a wonderful gal that I'm glad to have in my life.<span class="Apple-style-span" style="font-family: inherit;"><br />
</span></span><br />
<span class="Apple-style-span" style="font-family: inherit;"><span class="Apple-style-span" style="font-family: inherit;">"Cleaning for a Reason" performs their cleaning service once every four weeks for four consecutive months at no charge. Companies donate their time to do this. Although there are thousands of professional cleaning services throughout the United States and Canada donating their time to those in need, not all areas are represented. I checked and Rochester Hills has three businesses contributing to this worthy cause. </span><span class="Apple-style-span" style="font-family: inherit;"><br />
</span><br />
<span class="Apple-style-span" style="font-family: inherit;">It takes some effort to get registered, especially if the client doesn't feel well. To register, the cancer patient has to sign in at the website just after noon, Central time, Monday thru Friday. They accept a maximum of fifty applications each day nationwide. It takes a couple of weeks to process the application and there is a note that says that most of their maid service partners are full.</span><span class="Apple-style-span" style="font-family: inherit;"><br />
</span><br />
<span class="Apple-style-span" style="font-family: inherit;">So, if you know someone in need, it would be best to help them sign up for the service. I appreciate your caring and wanting to help--and very thankful that I'm without the need.</span><br />
<br />
<b>Oh, what a beautiful morning; Oh, what a beautiful day; I've got a beautiful feeling, Everything's going my way!</b><br />
<br />
It was an incredibly wonderful day today in Rochester Hills--sunny and warm (for February). The sky was blue, the birds were singing, the snow was mounded on the river and hills, couldn't ask for more. I'm feeling pretty much normal. Saturday was a good day, too. Friday afternoon I was a little tired after being out and about doing some chores. I laid down from 4:00m -7:00pm watched TV and slept intermittently. I'm learning how to slow down and take it easy... In the evening I felt better; like I was over the hump.<br />
<br />
I'm so grateful that I'm able to eat whatever I desire with no nausea or funny taste to my food. I seem to have my energy back and no aches or pains or flu-like symptoms many have to endure. My intestinal and reproductive systems seem to be doing well (I changed to some high-end probiotics this session taking them at breakfast and dinner) and no mouth sores either. I'm believing that all is well.<br />
<br />
Today Betsey and I walked the trail. It felt sooooo goooood to be out of doors. It was around 45 degrees and the air felt balmy on my face. I'd have walked more than our two miles but Betsey needed to get back to a social commitment. I was looking for something to do outdoors just to stay outside. I am so very grateful that I can continue many of my regular activities that don't involve being with people. I'm not willing to gather with groups, especially in close proximity of a home, because of the risk of infection. I'll have blood work on Thursday that will let me know whether my immune system is compromised. Our friends in Arizona and Florida have been challenged with coughs, colds and the flu and have needed meds. I think, until now, it's been too cold for bugs to live in Michigan. At least I haven't heard of many that have been ill. The warmer weather could change that.<br />
<br />
I'm especially thankful for the internet. It's my umbilical cord to the world. Even though I've pretty much eliminated all meetings and get togethers, I'm not feeling alone or lonely. Everyday there are several email messages in my mailbox with words of encouragement and news of what's happening in your lives. I get a warm feeling inside and am energized by your kind and hopeful words. Added to your messages was a phone call from Sophie yesterday. Jeff was visiting her for the weekend. She's doing great. Life is so very good!<br />
<br />
I'm off all meds as of Friday evening. I was given my main anti-nausea (antiemetic) drug this time via my port (infusion) before receiving my chemotherapy. The drug is called Emend. It's an incredible drug that is working full force for me. I also take steroids the day before, the day of and the day after treatment to counteract the possibility of an allergic reaction to the chemo. There are side effects -- I get ravenously hungry, hold fluids (look like the Michelin Man) and have an incredible amount of energy to get things done. I'm confident that this time I've skipped the 'let down' that can take place after stopping the drug.<br />
<br />
This session I've been able to sleep well every night. I changed to camomile tea (in a thermos) during the night. It worked well and I was able to fall asleep shortly after using the bathroom and having a drink. A friend commented, "I don't like camomile tea." It's amazing to me what I can like if it helps me accomplish something important to me--like getting a good night's sleep! <br />
<br />
It's been exciting for me to watch all the wonderful things happening in our world. I've been commenting for a few years that I believe that there is a huge undercurrent of people who have the same basic yearning for freedom, for human self-respect, for a home in which they can live and raise their family, the desire to have access to a good education, health care and food. Of late, I'm seeing people in our country and around the world making a strong stand for these things (with women being as prominent as men). I'm hoping and desiring that soon, we will reach the 'tipping point," that key moment of crystallization that unifies isolated events into a significant trend. I'm exhilarated by the thought that the spread of this social trend will cross a threshold and start to spread like wildfire.</span><br />
<span class="Apple-style-span" style="font-family: inherit;">May you have all that you desire in life and desire all that you have in your life. Happy Valentine's Day! Loads</span> of love and hugs, Joey/Josetta<br />
<span class="Apple-style-span" style="font-family: inherit;"> <br />
</span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com2tag:blogger.com,1999:blog-6111776941215424045.post-64184783332696316592011-02-09T22:24:00.000-05:002011-02-09T22:24:39.253-05:00Session 2, Day 2Day 2: Wednesday, February 9, 2011:<br />
<br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT-Moy_w8SBQRLTS_IhI3jY2LudSJEJOc3ow0Ac_Lw31oE57NUxNhh9g56Ja-Z12LSnhn9jKsBLpPs_-yfSoOIQo1vmQtjOQJrBAQGA3rgKKy-5zX27yQUsbl4-DfTWivujy-6p3PPDgDh/s1600/Before+kneading.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT-Moy_w8SBQRLTS_IhI3jY2LudSJEJOc3ow0Ac_Lw31oE57NUxNhh9g56Ja-Z12LSnhn9jKsBLpPs_-yfSoOIQo1vmQtjOQJrBAQGA3rgKKy-5zX27yQUsbl4-DfTWivujy-6p3PPDgDh/s200/Before+kneading.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Before kneading, inside of hat</span></td></tr>
</tbody></table><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9V9AM5gt_ZsF2tzr_KClhkoHGrMtjdYu-LQEyRMNmTAaJo6QoN5Rtbx5TKgikqkQ9oiFJJvMzrvOqXg4OKLsFeZp9stYU84tX5BCiP3PiIhll8_rdu3lGxA4nPVcBfzOag-ha9e_yxEVD/s1600/Happy+Patient.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9V9AM5gt_ZsF2tzr_KClhkoHGrMtjdYu-LQEyRMNmTAaJo6QoN5Rtbx5TKgikqkQ9oiFJJvMzrvOqXg4OKLsFeZp9stYU84tX5BCiP3PiIhll8_rdu3lGxA4nPVcBfzOag-ha9e_yxEVD/s320/Happy+Patient.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span class="Apple-style-span" style="font-size: small;">Happy Patient</span></td></tr>
</tbody></table><br />
<br />
Wow, I'm feeling quite well. I got a very good night's sleep. Yesterday, I had my second chemo treatment. All went well. Cathy put both Don and I to work on preparing and changing the cold caps. They're changed every 30 minutes starting an hour before my chemo starts, continue during chemo (a couple of hours) and then four more hours afterwards (at home).<br />
<br />
Cathy had full control of timing (a big job) telling Don when to take the caps out of the coolers that were filled with dry ice, checking for temperature and then telling Don where to kneed the gel to warm it up. She made sure we were changing caps at the right time...and the biggest job, she put my cap on so it fit perfectly. Of course, she jumped in to help during much of the stages. I didn't do much at the Cancer Center because I was 'hooked up'. At home, though, I was able to help so she could do her work (she brought her computer). We finished around 7:00pm. So in between she was able to solve a bunch of problems going on at work that only she could do.<br />
<br />
I'm on steroids the day before chemo, the day of and the day after. They provide a lot of energy so I'm able to get more done because I'm sure they hide my tiredness. The reason for the steroids is to prevent an allergy reaction to the Taxotere drug that they're giving me. Today's my last day on the steriods.<br />
<br />
Had a good day today, I got my Neulasta shot that will boost my bones to produce white cells that the chemotherapy has damaged. Last months it worked well. I'm expecting the same this month. I thought it also made my bones work hard to produce red blood cells as well as platelets. I'm disappoint that it doesn't.<br />
<br />
It was a good day. We had a wonderful dinner, no nausea and a desire to eat. Hope you're all doing well, too.<br />
<br />
<br />
<br />
<span class="Apple-style-span" style="color: #604d2c; font-family: Arial, Verdana, Helvetica, sans-serif; font-size: small;"><span class="Apple-style-span" style="font-size: 13px; text-transform: uppercase;"><b><span class="Apple-style-span" style="color: black; font-family: Tahoma;"><span class="Apple-style-span" style="font-size: small; font-weight: normal; text-transform: none;"><br />
</span></span></b></span></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-83641452818627882632011-02-07T21:00:00.130-05:002011-02-08T03:41:27.581-05:00Session One: Week 3<b>Day 22: Monday, February 8, 2011:</b><br />
I've had a busy week and a very good week. I walked after the snowstorm and loved it. We walk on the trails and the trails aren't plowed so it takes a lot of work to pick up our feet and trudge through the snow. Betsey complained the whole time saying that it was too much like work. It was beautiful (that she admitted). For those who don't know Betsey, she's going to be 85 in a week. We haven't walked as much as usual (every other day, usually four miles) since my surgery in early November. Mostly because of time conflicts with doctor appointments and the holidays. I thought maybe Betsey was slowing down from not walking as often. My friend said, "She's almost 85!!! and she's out there walking a mile or two when the rest of us are doing nothing!!!" Okay, I can accept that except that when she was 84, she trudged through the snow...without complaining. I love our walks and talks together. I know she'll change her attitude and will love walking in the snow again.<br />
<br />
I saw my doctor on Tuesday and pretty much all my blood tests were in the normal range and all side effects from meds and chemo gone. My white count was good which is why I'm probably feeling so well. (Thanks to Amgen who produces Neulasta--the company my niece works for.) Also, it means that my next session will be a 'go'. (If my counts are down, the therapy is postponed).<br />
<br />
I'm all set for my next chemotherapy on Tuesday (tomorrow) at the Karmanos-Crittenton Cancer Center in Rochester, just north of M-59 and east of Crooks. Cathy and Don will help me do the Cold Caps again. The word is that by Day 20, the hair is gone. I'm on Day 22 and have 99% of my hair. I've had some thinning these past couple of days, but nothing more than a few hairs on the comb or on my hands when I run them through my hair.<br />
<br />
We went shopping today and stocked up on supplies. This time I bought foods with spices and flavor. I hesitated doing that before my first session because I was told I'd probably prefer bland foods. I'm planning on feeling the same this session as last. I enjoyed Mideastern, Italian and Mexican foods...delicious! The more the flavor, the more enjoyable it was for me.<br />
<br />
I've been wanting to get out of doors and shovel. My doctor who 'installed' my mediport said, "No shoveling or washing windows for six weeks!" It's because she attached the port to my muscle and the repetitive motion could break it loose. It's not six weeks so I listened to her advice and didn't help Don. Donny came over for the big storm and used his snowblower to clear the driveway and walkway. He's a thoughtful kid and always there to help when needed.<br />
<br />
I've enjoyed the Master's Class Series (Diane Sawyer, Maya Angelou, Jay-Z and Oprah) on Oprah Winfrey's new OWN network. Ask Oprah All Stars with Dr. Phil, Dr. Oz and Suze Orman were pure entertainment and learning opportunities. Find her station and give it a try. On Comcast it's channel 2 and for High Definition (HD) it's 67. <br />
<br />
I hope all is well with all of you. I know some of you are facing much greater health challenges than I am. I'm with you surrounding you with prayers, healing energy and love and wanting the very best for you. I know that some of you are facing economic and personal challenges. Remember, they're all temporary. Vision how you would like your life to be; feel the joy, peace, abundance and good health. See yourself doing what your heart desires. I believe it will happen. We attract more of what we think and what we feel. Think thoughts that bring you joy, peace and abundance--and they will be yours. Laugh, love and enjoy! <br />
warm regards and lots of love and hugs, Joey/Josetta<br />
<b><br />
</b><br />
<b>Day 15: Monday, January 31, 2011:</b><br />
<b>Pure Luxury:</b><br />
There are a few things that I possess that are pure luxury in my everyday life. One is a small oscillating ceramic heater that I purchased early this season to use in our bathroom. I turn it on just before I'm going to shower. It warms our bathroom so that I don't have to come out of the shower shivering. I love it!<br />
<br />
Another is an electric mattress pad that we got for our bed a few years ago after hearing my brother talk about his. I turn it on to preheat about ten minutes before I plan on getting into bed. I turn it off before getting into my lovely warm bed. Oh, what a true pleasure. Our thermostat goes to a lower temperature around 11:30. Because I often stay up longer, by the time I'm ready for bed, the house is cold as well as me being cold. It's a true delight to warm my feet and body and quickly fall asleep.<br />
<br />
I'm feeling great, enjoying eating whatever I desire, having the energy to live life and keeping in touch with friends and family. Thanks for all of your support; it's very effective and helpful to me.Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-373300436559570662011-02-06T19:11:00.002-05:002011-02-08T02:31:33.182-05:00Session One: Week 2<b>Day 14: Sunday, January 30, 2011:</b><br />
Another beautiful day. I must get out today for a walk. The weather is a mild 28 degrees. I'm feeling pretty normal. It feels GREAT! We enjoyed watching some of the Sunday-morning shows that we taped, skipping through the commercials.<br />
<br />
My walking partner, Betsey, and I walked to downtown Rochester on the Clinton River Trail. We walked around town viewing all the ice sculptures for the Fire and Ice Celebration and worked our way to the Royal Park Hotel. I'm avoiding inside crowds/groups of people. As usual on a Sunday, the Royal Park restaurant was empty. Betsey had their special of ribs and coleslaw ($7) and since I'd eaten just before we started walking, I had a delicious apple dessert. We had a nice visit and then walked home. It was a beautiful walk. The sun was shining, the sky a deep blue and the snow a brilliant white. Betsey says it was 4.25 miles. I say it was more like 3 miles since we walked diagonally from Veteran's Point. I forgot to use my RunKeeper app on my iPhone. That would have ended the discussion. Whatever, it was a great walk!<br />
<br />
I'm feeling so fortunate to be feeling so good. If I'd lost my memory, I wouldn't have a clue that I'd had chemotherapy. Thanks to all of you for your incredible support. It does make a difference.<br />
<br />
<b>Day 13: Saturday, January 29, 2011:</b><br />
Up around eight o'clock after eight good hours of sleep. I'm ready to "tackle the world". I'm feeling fine--quite normal, no pain or side effects and have my usual energy. I did laundry and administrative jobs that needed doing. I was able to do some reading and catch up on some emails. I'm liking being at home and getting things done and also having leisure time. Life is good!<br />
<br />
<b>Days 11 & 12: Thursday & Friday, January 28, 2011:</b><br />
<b>Friday Afternoon:</b> I enjoyed being home alone with the the house quiet and the ability to concentrate and work at something I enjoy. I spent time on my blog and a bunch of administrative things that needed doing. I'm feeling quite normal. The meds the doctor gave me took care of the few things that were getting my attention.<br />
<br />
Now that I've mastered the iPhone app by Comcast (Xfinity), we have lots of recorded shows to view and we can zoom through the ads. Geez, it's a major improvement to TV watching.<br />
<br />
<b>Friday Morning</b>: Yesterday morning I met with Leah, the social worker at my doctors office. As I expected, she was an incredible help. She's a great listener and spoke the words and info that were a great help to me. I left feeling renewed and invigorated. I wish all of you could meet her--you'd love her, too.<br />
<br />
And, good, long-time friends (notice I didn’t say “old friends”) stopped by in the afternoon. It felt so good to be with them. They were a great help to Don and to me, too. I hooked up my laptop to our big TV and we viewed their photos from their trip to Florida--as well as other photos on Diane's thumb drive. It was just what both of us needed.<br />
<br />
Our family situation is much better, too. All the crisis have allowed for some good communication in spite of the nasty stuff that came first. Difficult times are all opportunities for growth--we're all changing.<br />
<br />
My doctor called yesterday evening to see how I was doing. I'm so impressed with the lady's compassion and caring. She asked about everything we'd talked about at my appointment earlier in the week -- which are all gone now. Then she said that I was at my 'lowest' point and that I'd be getting better every day. I told her if that were true, I'd be better than before I started. She got a big laugh out of my comment. I was serious. I feel fine.<br />
<br />
Yesterday, I did computer work in the morning, cleaned up, drove to Clarkston, spent 1 1/2 hours with Leah, drove back, made about a zillion business phone calls for a couple of hours, visited with friends for several more (setting up TV/computer and all kinds of stuff), fixed a quick dinner for Don and I, talked with Cathy about a bunch of things that interest her, straightened up around here, read some and went to sleep. Probably more than most 69-year-olds are doing.<br />
<br />
I slept well again last night (that's my pattern again) and was up around 8:00 and have been busy all morning. Can't ask for anything more.<br />
<br />
Don and Donny went to Chuck's Jordan's memorial today. Donny was asked to be the photographer. I would have loved to attend; too many people, too many opportunities for bugs to jump on me.<br />
<br />
Don and Donny picked up Donny's car last night. He calls it his "Ritalin" car, cause it mellows him out!<br />
<br />
Just wanted to let you know that we're back on an even keel again. Don't stop your good thoughts for our family, though... I continue to keep all of you in my prayers and well wishes.<br />
<br />
<b>Days 9 & 10: Tuesday and Wednesday, January 25, 26, 2011: </b><br />
I've thought hard and long about including the following. I decided I needed to in order to tell my real experience. These past couple of days have been the toughest days that I've had in many a year...not physically, but emotionally. I realize that I'm not on this journey alone. My whole family is traveling with me even if it wasn't their choice).<br />
<br />
For those who know me you'd likely agree that I'm the matriarch of our family or the linchpin/keystone. When Jeff was young (maybe 5, 6 or 7) a a good friend/priest joined us for dinner and asked Jeff, "Who's the boss in your family?" Jeff quickly answered, "My Dad is the president, but...my Mom is chairman of the board." Who knows where he learned that, but he did make us all aware of what was going on in our family.<br />
<br />
Anyway, this past week brought some big crisis/tough challenges to family members. Unfortunately, when we're in a tough position, very often fear takes over. That's what happened to a couple family members.<br />
<br />
Fear can show itself as--anger, withdrawal, inappropriate conflict, defensive behavior, anxiety, etc. I think it showed itself in all of the above ways--and I seemed to be the target of the ranting. Usually, I can deflect the behavior with comforting words. Not this time. I joined right in. I was disappointed and completely fell apart...I guess I could say "the rock broke". I cried, I banged a book on table several times...as hard as I could. I withdrew. I did my best to meditate, regroup and gain back my balance, my sense of peacefulness and my joy. Balance is the key to health in many ways. I know that other people don't have to change for me to experience peace of mind.<br />
<br />
I believe that love is the opposite of fear. We are all made from love--unconditional love; not the jealous, possessive kind, and I also believe that everything that isn't love is fear. I believe that if someone seems angry or jealous, or they feel guilty or they're acting judgmental, they are really just afraid of something--rejection, or loss of power/control, being abandoned, things like that." People do awful things to each other based on past perceptions. That's why we need to let go of the past. It's easy to do if we realize that we're only hurting ourselves. When I believe that the past has no power over me, I live in the present moment. When I'm in the present moment, I'm free of fear of the future. I don't have to be afraid of what 'I think' might happen to me and become stressed and depressed. I know that what I give my thought to is what gets bigger in my life. So, I focus my thoughts on love and give my brain a rest from scary thoughts. When I feel love in my life (internally through my God/spirit/energy who lives in me and through friends/family) I find a way to live in the flow of that love every day -- no room for fear. In some ways it's like having heaven here on earth... <br />
<br />
<div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;">A very old book that helped me to embrace these words, is: <i>Love is Letting Go of Fear</i> by Gerald (Jerry) Jampolsky, M.D. Another book that changed my life is: <i>A Return to Love </i>by Marianne Williamson.</div><div style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px;"></div><div style="font-family: Helvetica;"><br />
</div>I mentioned that we are all made from love (the image and likeness of God). "The kingdom of God is within us." Some call it an energy or the holy spirit. I believe that the essence of Jesus', Buddha's and Muhammed's message was, 'love and forgiveness'. It's also the path to the goal of inner peace. Forgiveness means letting go of the past. If you don't know how, "ask and you shall receive" or "knock and the door shall be opened to you". If you aren't comfortable asking God, you can ask the universe. Love is always there, sometimes we choose fear instead because we have a free will. Make your choice, I choose love.<br />
<br />
<b>Day 9: Tuesday, January 25, 2011, Morning:</b><br />
As you might have noticed I'm having a tough time just keeping up my blog. Actually, I'm doing very very well considering what my friends before me experienced with their chemo. My challenges have been from side effects mostly from drugs. Last night I slept very well. In the meantime, other parts of my body that are affected by the chemo (fast-producing cells) are showing themselves...my mouth, throat, intestines, etc. They easily get irritated because of the lack of mucous. These are mostly controllable with vigilance. So my day seems to be spent eating as often as possible (to keep up my weight) rinsing/cleaning my mouth afterwards, taking probiotics at regular intervals, hand cream on skin, lip balm every hour and other pro-active moves (you get the idea).<br />
<br />
I'm off all meds now (that's a full-time job managing them the first five days).<br />
<br />
Today I met with my doctor. My white count is up so my bones are doing what they're supposed to be doing thanks to the Neulasta shot. In the meantime, she recommended that I continue to stay away from groups of people; eliminating the risk of infection. She checked me over and recommended that I take Diflucan/Fluconazole (100mg.) for a few days to reduce side effects of mouth sores and tract infections. Dr. Jasti is doing her part to help me feel good through this therapy. She also gave me some Xylocaine viscous/Lideocaine to paint onto any mouth sores. I had a few starting on my tongue--wow, it's magic in that it numbs the area and NO pain.<br />
<br />
All in all, I'd say that I'm doing GREAT! My doctor and friends have all said that my first session is pretty much a pattern of what I'll be experiencing. I'm hoping and believing that to be true. We know what's worked and where improvements can be made. Hey, the next session ought to be a breeze...<br />
<br />
This is the first time I've ever said that I'd like to be in a warm environment this time of year. I could be out walking if that were the case, it's been just too cold for that until now. I hesitate to walk at the OPC since that could expose me to infection.<br />
<br />
Keep the prayers and positive words/energy coming this way. I'm continuing to keep all of my family/friends in my prayers and positive thoughts (includes you). We are all connected and one; we do affect one another. Let's take advantage of that and respond in a way that we can all benefit.<br />
<br />
<b>Day 8: Monday, January 24, 2011, Afternoon: </b><br />
<b>Afternoon</b>: (In response to many who have suggested medicinal marijuana) Yes, my doctor mentioned it (evidently it comes in a pill form--or that's what I surmised). I have an appetite and am eating a lot of food almost all day and evening. It's just that the Milk of Magnesia (4th day) cleaned everything out. Also, I think with the high pulse rate that I'd been having (not today, thank goodness) revs my metabolism. Who knows. I'm enjoying eating, it just takes a lot of time/work. Everytime I finish eating something I have to brush my teeth and gargle mouthwash, salt/baking soda water and club soda...by then I'm ready to eat again.<br />
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I'm really feeling mostly pretty good, especially during the day. A little 1/2 hour nap does the trick for tiredness. I'm feeling very, very grateful--no nausea and hardly any bone aches--more like just the usual. If our weather were warmer and no snow; I'd go out for a walk. I'm feeling up to it.<br />
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My oncology doctor has been great; I can't say enough about how supportive/helpful she is and always available. Her name is Dr. Jasti. She works out of the Karmanos-Crittenton Cancer Center in Rochester. She's warm, caring and knowledgeable. Can't ask for more.<br />
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You're right, getting old is not for sissies. love, Joey<br />
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<b>Morning:</b> I keep promising myself that I'll update my blog--today will be the day! I want you to know I'm doing really, really well. Anyway, I'm off all meds including Aleve and Motrin which gave me incredibly ringing in my ears (I always have tinnitis). I've had fast heart rates (in the low 90's; usual for me 60's and 70's) that caused pounding in my head/body at night and I think contributed to the brain activity. Last night I slept well. I wake every couple of hours to go to the bathroom cause I'm drinking around the clock--that seems to help me. I started this journey saying I'd take "one day at a time". That's worked well. Now, I have to take "one night at a time", too.<br />
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Also, I notice I can only talk to people a couple times a day or I get a bit of a sore throat and a gravelly voice. On the day I started chemo I had a sore throat and my white count was low (it was attributed to a viral infection). I've been fighting the sore throat the whole time with it gradually moving to drainage probably from my sinus on my left side.<br />
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I'm reading, watching TV shows I've recorded and movies...life isn't bad. I'd love to go out walking but it's been much too cold. I did go with Don to Meijers on Saturday and walked all around the store. It felt good to do that. I wasn't exhausted when I came home although I'd napped before I went since I hadn't slept the night before.<br />
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<b><span class="Apple-style-span" style="color: #351c75;"><span class="Apple-style-span" style="font-family: inherit;">Another Note sent on Monday:</span></span><span class="Apple-style-span" style="font-family: inherit;"> </span></b><br />
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I slept well last night. I wake every two hours to go to the bathroom and drink 12 oz of warm tea or milk. I find that if I can continue to keep fluids going in me, I feel much better. As Gilda Radner said, "If it isn't one thing it's another...bloody nose, itchy bottom...nothing major just little challenges. At least my head/brain is feeling closer to normal and not racing. All in all, I'm feeling quite good.<br />
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Today's challenge again will be to get food in me every couple of hours...I'm continuing to lose weight--down to one pound more than when we married--which was my low weight since probably 6th or 7th grade. I realize that I am not a snack eater or a junk food eater. That doesn't mean that I don't enjoy good dark chocolate, delicious pies or home-made (or Costco) cookies. Usually, one cookie does it for me (unless it's those little ginger cookies).<br />
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My Dad was right when he said, "When we get older, we have to keep about 5-10 pounds in reserve in case we have a medical challenge." Heed his advice. Thanks for caring and remembering me in your prayers. hugs, JoeyJosettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-68542488202907444412011-01-24T09:59:00.041-05:002011-01-28T13:08:09.679-05:00Session One: Week 1<div style="font: 14px Verdana; margin: 0px;">Here's Week 1.<br />
<span class="Apple-style-span" style="font-family: Verdana, sans-serif;"><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Sorry to be so late in getting this together. My first week of treatment has gone mostly well, especially no big-ticket side effects. I'm pleased. I've been told by my doctor and others that a pattern is formed with the first session. With a few tweaks with minor meds, I'm hoping for a very tolerable, un-eventful series of treatments. Thanks for your support, it's what helps me the most.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I've mostly drawn from emails that I sent to friends/family to bring my blog up to date. </div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 7: Sunday, January 23, 2011:</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'm doing incredibly well considering. Mostly my days have been quite good. I've had a few bad nights of not being able to sleep caused from meds. I'm off everything as of today, so hoping for the best tonight. The Zofran anti-nausea drug really did a job on my brain--wouldn't let it stop for a minute. I'm off that now for a couple of days. Something was raising my heart rate and making my head pound and my brain work at full speed again last night. Didn't get much sleep</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">When I started this adventure my mantra was, "One day at a time". It's worked very well, What I've added to it is, "One night at a time". Let 's hope that does the trick.<br />
<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><span class="Apple-style-span" style="font-family: 'Helvetica Neue';"><br />
</span> </span>The EMend (three pills, $150 each and worth every penny, taken day of chemo and the next two days) to prevent nausea really worked well. I've been able to eat pretty much whatever I've wanted--wonderful. Also, everyone talked about how the shot of Neulasta (to boost my white cells) would cause aching and flu-like symptoms--pretty much avoided that, too. I'm feeling strong. Yesterday we walked around Meijers to get some activity. Had a problem with constipation earlier from the Zofran and now am fighting a bit of vaginal irritation; but seem to have that under control this evening. I've been taking a lot of probiotics to get my gut and other areas back in shape; both are very affected by the chemo. So, all in all, I'd say I'm doing fantastic! It's been a "Doctor Oz" weekend--you know his favorite topic!<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>I'll see my doctor again on Tuesday to get a reading on my white count (she said it would be at it's lowest point then). I'm hoping that it will still be in the normal range, although I expect it would be on the low side. Then I wouldn't be as vulnerable to infection. <span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>Thanks for your wonderful thoughts and prayers. I believe it's you and all my friends/family who are carrying me at this time. THANKS. hugs, Josetta<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>I thought you might be interested in this info about the 5-HT3 antagonists (EMend) to prevent nausea: Chemotherapy affects normal cells in the body, especially faster-growing cells like those that line the stomach. The side effects can occur when chemotherapy directly stimulates a special "vomiting center" in the brain. EMend blocks the nausea and vomiting signals in the brain, rather than the signals in the stomach. (I didn't have to pay for the pills. There was an error on how they were prescribed so my insurance denied the claim. The doctor supplied a free sample. I expect next time they will be covered by my insurance). Because the pills are taken within 24 hours of chemotherapy, they're covered by Part B of Medicare -- not our prescription coverage. Same for all the chemotherapy treatments.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I slept well last night. I wake every two hours to go to the bathroom and drink 12 oz. of warm tea or milk. I find that if I can continue to keep fluids going in me, I feel much better. As Gilda Radner said, "If it isn't one thing it's another"...bloody nose, itchy bottom...nothing major just little challenges. I hope to get my Blog updated today (I say that everyday). At least my head/brain is feeling closer to normal and not racing. For a few days I felt like I had a major case of ADHD--constantly distracted and couldn't sit still.<br />
<br />
All in all, I'm feeling quite good. Today's challenge again will be to get food in me every couple of hours...I'm continuing to lose weight--down to one pound more than when we married--which was my lowest weight since probably 6th or 7th grade. My Dad was right when he said, "When you get older, you have to keep about 5-10 pounds in reserve in case you have a medical challenge." Heed his advice. Thanks for caring and remembering me in your prayers. hugs, Joey</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 5: Friday, January 21, 2011, Evening:</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">How great to hear from you. I'm doing really, really well. I started my chemo on Monday...it's late Friday evening. Tonight I feel just fine, few aches and pains--not bad for being 69.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I had one night without any sleep from side effects of med but last night slept well. I'm off all meds now except for Aleve or Motrin. I hope to get my blog up-to-date tomorrow. </div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Keep up the prayers, good wishes and thoughts--I know that's what is carrying me at this time. It takes a village for me, too.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Thanks for your great offer. You're the second one today who offered a place in Estero/Naples. Our friends in Clearwater offered, too. I know it's a bit cool there today but not nearly as cold as it is here. Today for the first time I mentioned that it would be nice to be somewhere warm cause it would be much easier to get out for a walk which I know would feel great to do. </div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'll see my doctor again on Tuesday to see where my white blood count is. I had a shot of Neulasta (Teri's company) the day after chemo (Tuesday) to supercharge my bones to produce more white cells. Next Tuesday I'll find out how effective it's been. My doctor says that I'll pretty much follow a pattern I'm establishing this first session...so far, so great. My blood count will determine how much I'll need to stay away from others to avoid infection which will determine how much a risk it will be for me to be around other people. I'm hoping that the shot will keep me in the 'normal' range... We'll see. </div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Hope you're doing well. I know you've had your challenges, too. I'm keeping you and all my friends/family in my prayers, too. We're all in this world together; we're really all more than that--we're connected--we're one. I'm feeling the love and support that so many are sharing with me. It's quite phenomenal. hugs, Joey</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 4: Thursday, January 20, 2011:</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;"><span style="font: normal normal normal 14px/normal Verdana;">Evening: </span>I saw my doctor this afternoon, she said I looked sleep deprived. I didn't feel tired but I knew I didn't get much sleep again last night. I feel like I have a different body attached to "me". She said that next time we'll eliminate the Zofran (constipation/racey brain) and use compazine instead. I have the beginning of what could be mouth sores--she said the same thing friends recommended: 1teas baking sode and 1 teas salt in a bottle of water. Swish after eating anything and gargle. Sounds easy and worth a try. </div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Washed my hair today and patted it dry. No hot blow dryers, brush rollers, hair straighteners, etc. allowed. I like my new "do". I knew my hair was wavy; actually I have some curls. It sure shortened my 'time to get ready'. Also, I'm thoroughly enjoying the new makeup and lotions that were given to me at a "Look Good...Feel Better" session I attended last week. I highly recommend it to any friends/family with cancer. <b>http://www.lookgoodfeelbetter.org</b></div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;"><span style="font: normal normal normal 14px/normal Verdana;">Morning:</span> My head is a bit buzzy, so hope I can make sense in this blog. I'm doing quite well...no nausea, eating whatever I desire, no aches and pains as most said they'd experienced. However, the anti-nausea medicine (Zofran) has kept my brain going at a high-rate of speed. I'm tired but my brain won't let me sleep. It's the weirdest feeling, maybe it's what it's like to get High or be ADHD. </div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Thanks to a beautiful email card sent by my sister-in-law, Jeanne this morning; I've remembered that today is our 49th wedding anniversary. Thanks Jeanne, the card is beautiful and touched my heart.</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'd written some notes to family that I've included below. I've made changes to make them more understandable to you. It seemed like the best way to capture what was happening with me.</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 3: Wednesday, January 19, 2011, Morning:</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'm doing exceptionally well for Day 3. I'm beginning to feel a little achy, certainly tolerable. My head is a bit spacy and loopy from the medicine I take for anti nausea--I'll tell more about that in my blog. I need to do some resting soon since I've been taking advantage of feeling good and getting things done all morning. Later I'll do a blog entry. I thought Cathy would do one yesterday but she was busy with work (and tired from all she did on Monday with the cold caps). She's added it to her Facebook and two of her good friends have friends starting treatments in a couple of weeks and are interested. She's helping them with info that we got from the company that she's re-written for us, to make it easier to follow...what can I say...she's been an incredible help with the cold caps. There is NO way that I could have done them without her skills. Not one hair on the pillow today! We'll know before my next treatment that they worked.<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>Thanks for all your prayers and good thoughts. I really do believe all of you are carrying me at this time. Keep them coming... Yes, absolutely, "it takes a village". <span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>Don's doing better, too. Leading up to my first treatment was pretty taxing on him hearing so many things he didn't comprehend. The day of treatment (helping out with the labor-intensive cold caps the first time) was very stressful, also. He's much better knowing that I'm not suffering. I expect he was scared not wanting to see me in misery and not being able to do anything.<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>Getting through all the pills each day has taking some organizing. I made up a schedule on graph paper where I track the day/time I take each pill. I think I have that down now. Two pills I only had to take for three days at the beginning of each session at different times; I'm done with those today. The rest will be easier to take now.</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;"><span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
</span>I thought I'd be so miserable today (from other's reports) that all I'd do was watch movies and sleep. After I get cleaned up--I'm going for the movies! ...and looking forward to watching.<span style="font: normal normal normal 14px/normal 'Lucida Grande';"><br />
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</span>Hope all of you are doing well. I send joyful/prosperous/healing thoughts to all of you and keep you in my prayers, too. Keep warm where ever you are. hugs, Josetta</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 2: Tuesday, January 18, 2011, Morning:</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'm doing well, had my first treatment yesterday. I have a doctor's appointment today for a Nulasta shot that will supercharge my bones to manufacture more white and red cells and platelets--getting me back in shape for another treatment three weeks from now.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'm feeling a bit tired, not surprising. Yesterday was hectic because I'm using Cold Caps to protect my hair. The process is very labor intensive: changing hats every 30 minutes, preparing them (massaging them to the correct temp) making the switch and then folding and replacing the hat in the dry ice cooler. Cathy and Don were busy the whole time, I sat there...very different for me. I'm ready for some peace and quiet. It's nap time when I finish this note.</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Yes, I'm surprised I'm writing, too. Today I have a little headache and I get lots of hot flashes but since I'm usually always cold, they don't bother me. I believe it's all the GOOD THOUGHTS coming my way--without a doubt!</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Hope all of you are doing well. Thanks for your prayers and good thoughts. Have read all your comments. Joey/Josetta</div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px Verdana; margin: 0.0px 0.0px 0.0px 0.0px;">Day 1: Monday, January 17, 2011, 11:45pm: Chemo today</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'm feeling a little bit achy (especially around my neck and shoulders) and tired (falling asleep watching something on TV that I want to "see/hear" which I know Don would say isn't new for me). However, I'm more in tune with listening to my body at this time.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Sometimes I feels like I still have the Cold Cap on (my head doesn't feel cold to the touch, just that same feeling of moving my head and having it feel cold). My stomach is holding out.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I'll take my vitamins and calcium tonight; do the ritual of brushing teeth, baking soda/club soda, using my mouthpiece. No combing hair or doing anything to it. It doesn't look that bad considered it was squashed down for 8 hours.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I keep getting tingling in my toes and fingers periodically--moving them seems to eliminate it. That's why I didn't want to go to bed right away. I've decided sleep would be a better choice for now. I'll take water to my bedside along with some Vernors for moments that I wake and want to continue to drink fluids as highly recommended to me.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">So far, so good. I know that my biggest challenge will come after getting my Nulasta shot tomorrow. It's important to me to have the shot to boost my body to produce white infection-fighting cells. I started out with a sore throat this morning and a little bit higher white blood count. It was with me all day and now feels a little less. I'm hoping by morning it will be gone. I felt like the sore throat was mostly caused from talking so much at Rita's 70th surprise birthday party yesterday. It was a wonderful time for me because Rita was so surprised and thrilled. It was also wonderful for me to visit with many mutual friends who have been a part of my life for six decades. I also know that I won't be participating in a group gathering most likely until my sessions are complete (six sessions with 3 week intervals).</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">I have to THANK Cathy for being exceptionally prepared and taking over today. Very often that's a role that I take. I couldn't have done the Cold Caps today and there was no need for me to do it--she was prepared, ready and carried out her plan. There were so many things (she can tell you about it). I know she didn't get a break of more than ten minutes all day. I hope she sleeps well tonight.<br />
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<b>I've added photos of Don and Cathy doing their job. Click on the 'Photo' tab above to view.</b></div><div style="font: 14.0px Tahoma; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">All this labor-intensive endeavor is to save my hair. Most who have used this process in recent years have had great success. It's done on the day of treatment (one hour before, during and four hours afterwards). It sure was an incredible distraction from the chemicals going in me. During the treatments, I felt fine--uneventable--fantastic! ...what I asked for</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Thanks to Don, too. As always, he did a great job of driving, carrying/moving the dry ice containers as well moving around the dry ice as the cases holding the hats were changed and prepped for their second use. He did all the other 'checking out' of other things that were desired. Couldn't have done it without him. The nurses, the office staff, Lytle pharmacy have all been working hard to get all my scripts, respond to the rejects and making it happen that I had all that I needed to start out. They're continuing to work diligently to have what I need at my second session in three weeks. It's wonderful to have this great team taking over for me...waiting on hold and acting on the next action necessary and finding incredible options.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">A quick note: I watched the interview conducted by Piers Morgan on CNN Monday night--interview of Oprah Winfrey. I found it to be an incredible interview, although not sure Piers understoodd Oprah's powerful message behind what she believes and practices. I could completely understand what she was saying and have embraced that perspective on life. I hope her interview opens much dialog. I'm ending now with more thoughts. I'm tired and my head is a bit loopy, writing different words than I'm thinking.</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;"><br />
Let me know what you thought of the interview if you saw it. You can use the comment link.</div><div style="font: 14.0px Helvetica; margin: 0.0px 0.0px 0.0px 0.0px; min-height: 17.0px;"><br />
</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">Thanks for all your prayers, good thoughts, caring, emails, and cards.</div><div style="font: 14.0px 'Helvetica Neue'; margin: 0.0px 0.0px 0.0px 0.0px;">hugs and warmest regards, Joey/Josetta </div></span></div>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com2tag:blogger.com,1999:blog-6111776941215424045.post-71410140934214802002011-01-15T20:57:00.000-05:002011-01-15T20:57:50.084-05:00I'm ready to begin treatmentsFirst, I want to thank all of you for your prayers, caring words, healing thoughts, cards, emails, comments and inspiration. I'm feeling your support around me. At first I saw it as a protective shield like the thick plastic/glass that they used to have in banks. Gradually it's changed to a beautiful, rounded crystal-like thick shield that completely surrounds me from toes to head. It provides protection from fear and anxiety. It also surrounds me with a feeling of peacefulness and calm that comes from your love and concern. THANKS...words are inadequate to express my thanks to all of you. You're a thousand times better than a pill or a potion..<br />
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I've decided to begin my treatments on Monday January 17. My oncologist, Dr. Jasti, will be moving her practice to the new Karmanos Cancer Center in Rochester in a couple of weeks. Her present office area where my first treatment would be given is crowded, tired and chaotic appearing. I was having a difficult time feeling like it was a place of healing for me. When I mentioned this, it was suggested that I have my first treatment done at their beautiful Clarkston office (Great Lakes Cancer Institute Building) and the remaining sessions done at the Karmanos Cancer Center. So be it!<br />
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My visits to Dr. Folby and Dr. Flaherty (Karmanos-Detroit) provided me with valuable info to learn more about my situation and to understand the impact of a metastasis; yet at the same time realizing that there is no 'right' chemo treatment for an individual. <br />
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Dr. Flaherty is a researcher, teacher and practicing oncologist. He believes it's necessary to use the biggest 'hammer' to avoid recurring cancer, no matter what the damage (long-term side effects). I would agree if my cancer had metastasized. My chemo is for preventive purposes in case I have one or some stray cancer cells in my body. Also, I could use the strongest most toxic chemicals and there's no guarantee that it would be the 'right' chemicals to eliminate my cancer cells (if I have any). No one knows. It's a risk determined by statistics.<br />
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My analogy: I see myself trying to mount a special sculpture to a wall. It has a nail attached to the back. I have many options:<br />
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<ul><li>Carefully hold it and press it into a small hole I've made in the wall -- using no hammer/tool. (Be the 50% of the statistics that use no therapy and have no cancer recurrence). </li>
<li>Use a padded hammer and carefully tap it until the nail goes into the wall . (Take an aromatase inhibitor (daily pill) for five years and be one the 76% who have no recurrence). </li>
<li>Use a huge mallet and pound the sculpture till the nail goes into the wall with the possibility of damaging the sculpture itself (take aggressive chemotherapy treatments and be one the 84% who have no recurrence.</li>
</ul><div>I've decided to go with the aromatase inhibitors and chemotherapy (there's something inside of me that says that I need to know I've done what I can). I've chosen a less aggressive chemo treatment, with less major side effects (heart damage). I know that at anytime I can stop the treatments or change the treatments. I'm comfortable with my decision and ready to start.</div><div><br />
</div><div>I'm so grateful that I called a halt to the original start date of January 3. I had surgery on the 2nd to have my Medi-port 'installed'. I found out about the test results which indicated the need for chemotherapy on December 27...giving me a couple of days to make a decision and 'prepare' for this huge commitment.</div><div><br />
</div><div>In these two weeks I've learned invaluable information that's helped me to make my decision and prepare myself for my treatments. I've decided to use Penguin Cold Caps to preserve my hair. It's pretty much guaranteed that with the chemo I'll be taking, I'd lose all of my hair with the first treatment. Cold caps are a labor intensive process that's done an hour before, during and four hours after the treatment. Cathy's taken the lead role, learning how to do it. She's in charge of preparing and changing the ice caps. There's a link on the right if you want to learn more about it. I've met and talked with several who have used it. They've all been successful in keeping their hair. Michelle has been so gracious to loan me the necessary coolers, special thermometer and other 'tools' necessary to carry this out. More than that, she's been extremely helpful in giving me tips on how to use them. She's also been extremely helpful (as have other women) with sharing their techniques to avoid other side effects of the chemotherapy. I'm feeling well prepared for this adventure...</div><div><br />
</div><div>I also attended a Look Good...Feel Better session that's put on by the American Cancer Society, the Cosmetic, Toiletry and Fragrance Association and the National Cosmetology Association. It's like a make over for the spirit. I met a couple of gals that were in the midst of their treatments. If I'd met them at a luncheon, I'd never have known. They looked great; it was a real inspiration and hopeful time for me. We were provided with a kit of cosmetics, skin products, etc. that we step-by-step applied. It was fun, light and informative. I love some of the new products that were given to me at no charge. If you know of a woman with cancer, find out where a session will be held near her and help to get her there. 1-800-395-LOOK or http://www.lookgoodfeelbetter.org</div><div><br />
</div><div>Quite 'accidentally' (or maybe it was synchronistic) I ended up in the Wilson Cancer Resource Center in the Beaumont Medical Center across from Troy Beaumont Hospital. It's a goldmine of education, guidance and support for those with cancer--to help them through the maze: Integrative Medicine (body, mind and spirit), Naturopathic Medicine, programs and wonderful people. No matter what hospital you're working with, find yourself an Oncology Nurse Navigator who can provide help as you choose your path. The phone number to Wilson Cancer Resource Center is: 248-964-3430. Anyone with cancer can make use of this wonderful source of help. http://cancer.beaumonthospitals.com/troy-resource-center</div><div><br />
</div><div>Another source that was very helpful for me, is Swan for Life Cancer Foundation. It's a non-profit cancer support organization for those newly diagnosed with cancer, patients with recurrences, friends, family and survivors. Leah, their oncology social worker, was my first helper. She's outstanding. She quickly identified how she could help me cope with this turn of events and she did!</div><div>Rochester: 248-650-1090 and Clarkston: 248-620-9600 http://www.swanforlife.org</div><div><br />
</div><div>I've had help from my niece (Teri), my doctor, my family and friends. I thank you again and again. If I haven't called on the many others who have volunteered -- you're not out of the woods, yet! </div><div><br />
</div><div>As you can see/hear, I've been extremely busy getting myself (inside and out) ready for this adventure. In some ways it's similar to what I did getting ready for my month in China, Morocco and other places I've visited. I'm feeling like my preparations are all lined up. I'm ready to go...</div><div><br />
</div><div>I'm scheduled for six treatments (every three weeks). I'll be taking a regime called TC (Taxotere/Cytoxan). Chemotherapy works by killing fast-growing cancer cells. Unfortunately, chemo can't tell the difference between cancer cells and fast-growing healthy cells (blood-forming cells in bone marrow, hair follicles and cells in the mouth, digestive tract and reproductive system). This puts me at risk of lowering my white blood cells which are the cells that fight infection. I'll be getting a shot of Neulasta the day after each treatment to help my body produce more white cells. I've had prescriptions filled for many anti-nausea drugs--seems like the medical community has a good handle on preventing that awful feeling (according to those who have gone before me). </div><div><br />
</div><div>Help me to visualize the chemicals flowing through my body, finding any/all cancer cells and washing them away forever. </div><div><br />
</div><div>Keep me in your thoughts and prayers that these treatments will be uneventful, beneficial and fruitful. Also, I'd prefer that side effects be at a minimum! love and hugs, Josetta<span class="Apple-style-span" style="font-family: arial, sans-serif;"><span class="Apple-style-span" style="font-size: x-small; line-height: 14px;"><span class="Apple-style-span" style="color: #464646; font-family: Helvetica, Arial, sans-serif; font-size: small;"><span class="Apple-style-span" style="font-size: 12px; line-height: 16px;"><br />
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</div>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com4tag:blogger.com,1999:blog-6111776941215424045.post-6721370605552715632011-01-09T14:29:00.002-05:002011-01-09T14:53:59.111-05:00It's coming togetherI'm beginning to feel like my information search is coming to an end and that I'll be able to make a decision and be comfortable about it in a couple of days. I met with my first oncologist on Thursday and with Don's oncologist at Karmanos/Detroit on Friday. They each have different perspectives about my treatment and timing. My Friday doctor made a very strong case for the need to 'do whatever possible' to eliminate the chance of the cancer recurring. He works with studies. Everything about cancer is a statistic--not much is about me as an individual--my health, my lifestye, my diet, etc.<br />
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I've read that selecting the treatment is the most agonizing part of this entire process. My survival hinges on making the right choices--and none of the doctors even know for sure what that would be. Once I make my decision, I plan to live more peacefully with ambiguity and uncertainty--as everyone healthy or sick must do. I'm putting myself in the 'healthy' category; I feel fine, have lots of energy and believe that the cancer was removed from my body.<br />
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I met with a social worker at my oncologist's office who was a huge help emotionally as well as providing complimentary medical resources to help reduce chemotherapy side effects--like acupuncture, massage, yoga. nutrition and visualization (which I'm particularly interested). I happened upon the Oncology Nurse Navigator at Troy Beaumont, another wonderfully, supportive woman.<br />
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What's amazing is how so many of the people who have been very helpful to me have come into my life just when I needed them. When I was feeling lost, drowning and frightened; someone appeared to take my hand and lead me to shore. <br />
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I'm in the process of getting 'things' ready...similar to the feeling I had before each of my babies were born. I'm almost there, ready to begin my chemotherapy. It's the Contingency Planner in me...figure out what can go wrong, eliminate the chances of it happening and be prepared if it does. It's what I was trained to do and really a part of me since I was a young child.<br />
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Now, the last step for me is to get my head ready. I'm almost always the person who sees the glass half full. I also believe that what I put my attention on is what I'm drawn to; I'll put all the side effects aside and see the chemotherapy searching through my body for any stray cancer cells and eliminating them efficiently and completely. (I'm working on a couple visualizations involving water.) I'll picture myself during this time as healthy and content.<br />
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<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><i>Nothing has to happen immediately, this minute or right now. It's okay to pause for a moment, take a deep breath, then go quietly inside and ask LIFE to lead me to my best outcome. The only thing I have to do is to get out of my own way.</i></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com13tag:blogger.com,1999:blog-6111776941215424045.post-23141388856762621322011-01-04T12:00:00.004-05:002011-01-09T14:39:28.500-05:00OncotypeDX test results and chemotherapyIt's been a hectic, emotional week for me.<br />
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I got word from my oncologist on Tuesday, Dec. 28, that the results from my Oncotype DX test showed that I was at a high risk for a returning cancer (metastasis). That means that I'll be starting chemotherapy treatments shortly. I had surgery yesterday to implant a Medi-port. The purple port was placed near my collarbone and looks like a bump under my skin. It runs into a large vein near my heart so that infused agents will spread quickly through my body.<br />
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I'm meeting with another oncologist on Thursday and Don's oncologist (Karmanos-Detroit) to determine the type of chemotherapy that I'll be receiving. It looks like it will be a 3 to 6-month therapy. I'm wanting to avoid Adriamycin because of it's horrific long-term side effects.<br />
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This has been a major surprise to me. My original pathology report showed that I was low risk. This newer test looked at 21 genetic markers (16 cancer genes, 5 control genes) in the tumor tissue that was removed (not to be confused with genetic heredity factors) that show prognosis and prediction of recurring cancer. The test is only done on hormone positive and node negative women.<br />
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So, I have many decisions and preparation before treatment begins probably next week. I need to cancel my classes I teach and functions that I lead with a few groups that I belong to. Even if I feel well, I've been advised to stay away from groups of people because of my compromised immune system. I was hoping I could drop in if it was a 'good day'. We'll see how my white counts turn out...I've been told that there is a repeatable pattern to the therapies. I've been told I'll be having my chemo treatments every three weeks.<br />
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Remember, this is being done for prevention of recurring cancer. I don't want to forget that they removed all of my cancer and found none in my lymph system--very hopeful report. It's still difficult for me to say that I'm grateful for this test...maybe ignorance would be bliss! With this information, I knew I had to act even though it's a BIG step! I've done lots of research and am feeling better about my decision. After meeting with two oncologists this week, I know that I'll be able to embrace the therapy I choose.<br />
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Keep me in your prayers for uneventful therapy that is effective--with minimal side effects. I started this blog because it seemed like the best option to remain in communication with friends and family. I'm having a very difficult time now responding to phone calls and emails. Finding time is a real struggle.<br />
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This wasn't the adventure that I planned for the first half of 2011 -- but it's the one that I'm on. I'll do my best to stay aware of all the good that comes from this journey. When I'm having tough times, I'll know that it's only temporary. I'm sure this Spring will hold more meaning for me than ever before.<br />
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<i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;">Caution is not the same as fear, and observation is not the same as judgment. </span> </i><span class="Apple-style-span" style="color: #222458;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;">An ounce of prevention is still worth of pound of cure.</span></i></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com1tag:blogger.com,1999:blog-6111776941215424045.post-66860505929866816012010-12-27T09:30:00.063-05:002011-01-09T14:39:36.078-05:00Waiting...I had a wonderful holiday with family and friends. Having Sophie here was the frosting on the cake. She's a wonderful ten-year-old: fun, mature, bright and considerate (no bias on my part!). On Monday my brothers' families and ours gathered together for the afternoon and evening. Besides visiting and catching up with each other's lives, we tobogganed, did a 'Room' Rally and shared a delicious meal together.<br />
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The "Room Rally" was put together by Cathy and Dan--an inside Road Rally. She had three generations on each team and no siblings together. It was a challenge and a delight. We put puzzles together, climbed stairs to math problems, answered family questions, counted items and identified music from songs -- in order to solve the clues. The young ones were as valuable as us old ones for solving the clues. We were all blown away with the professionalism of how it was put together. Sophie enjoyed it so much that she did her own Room Rally to challenge us on Christmas Day. The winner won the honor of being first to open our gifts from her (all homemade with much consideration as to personal desires). <br />
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Christmas day Sophie had us out tobogganing again--me included. Wow! I think it was the best tobogganing we've had since we moved in 31 years ago. We'd go all the way across the pond to the other side. It was just what I needed--getting out in the fresh air, climbing back up the hill and having fun. It was a great distraction from waiting for the Oncotype DX test results. <br />
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I'm on edge with my emotions on the surface. Don and I watched a superb DVD titled, "Breast Cancer: The Path of Wellness and Healing". It's 5 hours of invaluable insights on fearlessly confronting cancer; a great tool for building knowledge and inspiring hope. I'm feeling more prepared for whatever the outcome of the test. Here's a link to find out more about this incredible DVD: <a href="http://breastcancerdvd.org/">http://breastcancerdvd.org/</a><br />
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<span class="Apple-style-span" style="color: #222458; font-family: Helvetica; font-size: 13px;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: black;"><span class="Apple-style-span" style="font-size: small;">G</span></span></span></i></span><span class="Apple-style-span" style="color: #222458; font-family: Helvetica; font-size: 13px;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">ood things await you on the other side of this </span></span></i></span><span class="Apple-style-span" style="color: #222458; font-family: Helvetica; font-size: 13px;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">ridge. This is a hill you can climb. </span></span></i></span><span class="Apple-style-span" style="color: #222458; font-family: Helvetica; font-size: 13px;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">Just put one foot in </span></span></i></span><span class="Apple-style-span" style="color: #222458; font-family: Helvetica; font-size: 13px;"><i><span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="font-size: small;">front of the other.</span></span></i></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-28433201446112108222010-12-12T23:45:00.022-05:002011-01-09T14:39:42.731-05:00Latest News with a TwistI'm feeling really great. I'm pretty much back to my "old" self. Back to doing almost everything--even the ironing!! <br />
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I saw my surgeon this past week and she was ecstatic about how well I was doing. She said that usually she'd have me coming back at two week intervals a few more times. I won't see her again until June and that's because I'll need to have a mammogram of my other breast. It's amazing how well the reconstruction has gone, too. It's almost all healed. I don't need a second surgery--just a nipple construction and a tattoo of the aureola (probably in February). It's all pretty amazing! I have to keep my arm elevated--too much time on the computer causes uncomfortable swelling. <br />
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I thought I was out of the woods and wouldn't have to have chemotherapy...the oncologists are seeing the picture a little differently. My tissue has been sent to California where it will be analyzed to see what my risk of recurrence is and whether my risk can be reduced with chemo. I'll get the results back later this month. So, I'm asking you to be positive, pray and believe that my risk will be very little and no chemo will be necessary. Then, we'll all celebrate in January!!! <br />
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Cathy's flying out to pick up Sophie in California on Dec. 17. They'll return late on the 18th and then our Christmas celebration will begin. I'm looking forward to having time together with Sophie and having our extended family together on Dec. 19. Jeff will take Sophie back on Dec. 26.Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-62557847020225668762010-11-16T23:00:00.003-05:002011-01-09T14:39:47.733-05:00Good NewsI'm doing fine. I'm quite surprised how well I'm doing and I had high expectations for my recovery. I had surgery on Wednesday, Nov. 3 and by the following Monday I was feeling quite well, even my energy level was fairly high. I only have one tube left...will probably have that removed on Tuesday when I see the doctor. (It was removed on Nov. 24th).<br />
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I'm very pleased with my reconstruction. Except for the bruises, it's looks pretty darn good. I won't need a second surgery because of the new type of surgery my doctor used (Alloderm). I like being able to look down and look the same. I expect in a year or so, I'll forget that I even had it done.<br />
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Now the really good news: My pathology report came back with very good news. The first cancer was removed intact with more than enough tissue for a very clear margin. The second tumor was non-invasive, which means that the cancer was within the duct (in situ,no spread into nearby tissue). My tumors were both within the size to classify the cancer as Stage 1. The lymph node (they only had to take out one) was negative.<br />
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So, no chemo, no radiation. Most likely a pill to prohibit my body from producing estrogen (my tumor was estrogen positive). I'll meet with an oncologist in a couple of weeks. <br />
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<span style="font-family: Georgia, 'Times New Roman', serif;"><em>As you can imagine, I'm one happy camper!</em></span>Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-20816554860416589462010-11-10T22:50:00.002-05:002011-01-09T14:39:58.643-05:00Post SurgeryI'm doing quite well now. That second day in the hospital was a real downer...glad it's over and I'm recovering a little (actually a lot) each day. It feels so good to be home.<br />
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Neighbors and friends have been extremely generous with providing us with delicious, healthy food and beautiful flowers. I'm blessed by my whole experience. Thanks for all the beautiful cards, loving thoughts, prayers and positive energy. They've helped to boost my spirit and heal my body.Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0tag:blogger.com,1999:blog-6111776941215424045.post-41996906437306079022010-10-29T22:00:00.002-04:002011-01-09T14:40:03.791-05:00Pre SurgeryThanks for your prayers, good wishes and concern. I'm doing well--very well. I've talked with friends 'who have gone before me' and are doing well. My Mom had breast cancer when she was 73 (I'm only 69). She had one of the first lumpectomy's followed by radiation. She was 90 when she died with no recurrence. I'm expecting the same. Because I'm having a mastectomy, I most likely won't have radiation. If my lymph nodes are negative--no chemo either.<br />
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I've been surrounded by love since this challenge began; it's done wonders to keep away fear. So, I've been quite peaceful throughout this whole process. The cancer was found very early so that's another positive sign.<br />
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I have a wonderful surgeon who's kept me informed of every detail of what is, will or could take place. She's also very supportive. All the medical people that I've had contact with have been extraordinary--providing hugs, prayers and support as well as great medical care. It's been an amazing journey.<br />
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My surgery is scheduled for Wednesday, November 3 at Crittenton Hospital. Keep me in your prayers, send good wishes/positive energy or whatever you do for those that you care about.Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com1tag:blogger.com,1999:blog-6111776941215424045.post-58237584879334198152010-10-10T00:00:00.004-04:002011-01-09T14:40:08.942-05:00How the adventure began...On August 17 I had my annual GYN exam and was given an A+. A few weeks later I had my usual mammogram. I needed to do a repeat, then an ultra sound, next some core biopsies, and finally an MRI.<br />
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This past Wednesday, I had a 2-1/2 hour meeting with my doctor who specializes in breast diseases and she answered all of my questions before I had an opportunity to ask them. I'm confident in her knowledge and skills. I'm feeling really good about what's happening.<br />
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I'm doing quite well--very well. I'll be having a mastectomy of my right breast unless I have a spontaneous remission. Yesterday I met with a plastic surgeon and I'll meet with another one next week. I'm not sure yet whether I want reconstructive surgery--am at 60/40. I'll probably have my surgery within the next two to three weeks; the reconstruction is started at the time of the mastectomy.<br />
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The MRI showed another tumor running from the first mass to the nipple (about 3.5mm). If I have a lumpectomy, there's a good chance that I might have to have a second surgery--more removal of the tissue or more likely, a mastectomy. I'd rather have one surgery. Also, with a mastectomy, the likelihood of radiation is very, very low. Chemo would occur only if I have positive lymph node involvement. She'll be doing sentinel node surgery. So far, pathology reports did not show lymph involvement. I have estrogen receptor positive cells (which has advantages), progesterone negative and ERT2 negative .<br />
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I'm feeling fine--do not have a clue of what's going on in my body. If I'd skipped my mammogram, I'd think I was just fine...<br />
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I've been uplifted by family and friends. I've always believed in living in the moment which I'm continuing to do. I'm surrounded by love of friends and family that keeps out all fear and anxiety. I'm still sleeping well at night, that's my gauge that I'm being honest with myself.<br />
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I'm making changes to my life--nurturing myself more than others--creating a balance in my life that was off balance. This is another learning experience for me in this lifetime. It's exciting and an adventure in many ways. I know and feel that "all will be well".Josettahttp://www.blogger.com/profile/16611874503103693504noreply@blogger.com0